Search:

Type: Posts; User: MikeInMT

Page 1 of 4 1 2 3 4

Search: Search took 0.00 seconds.

  1. Replies
    4
    Views
    2,419

    I am 2 years and almost 3 months out, and I still...

    I am 2 years and almost 3 months out, and I still have full medicaid/medicare as I had before surgery. But it does vary state to state. I am in Montana if this helps. Montana Medicaid Travel still...
  2. Replies
    8
    Views
    10,502

    I would have to agree with you kenna2 pretty much...

    I would have to agree with you kenna2 pretty much every health related subject barely applied to me. Eat a low amount of calories and as little fat as possible.. right did they not want me to be at...
  3. One of the biggest issues I had in my later high...

    One of the biggest issues I had in my later high school years was being sick a lot and fatigue. I am not sure if you know but usually when we get sick its cause of pneumonia and it puts us in the...
  4. Replies
    12
    Views
    12,523

    I don't think smoking it helps with antibacterial...

    I don't think smoking it helps with antibacterial or antifungal, if anything is a higher risk for getting them infections. That being said, Several years back I asked my CF specialist about it, and...
  5. Replies
    3
    Views
    2,894

    Good for you, I am glad you are doing this. I...

    Good for you, I am glad you are doing this. I don't have a blog, but have a small circle of CFers that are pre-transplant that I tell my transplant expierence to, and the few who have transplant are...
  6. Replies
    3
    Views
    2,826

    I will send you an email, although for all of us...

    I will send you an email, although for all of us cfers I am not sure how we can really explain how it has impacted our lives, as we have lived with it our whole life. Well excluding those who had a...
  7. I am sorry that you were diagnosed in your teen...

    I am sorry that you were diagnosed in your teen years. I know CF can be very difficult at any age in life. And I am probably not the first to tell you, it is perfectly normal for us cfers to go...
  8. Replies
    3
    Views
    1,903

    I don't live anywhere near lafayette, but it is...

    I don't live anywhere near lafayette, but it is my last name
  9. Replies
    5
    Views
    3,243

    I also missed a lot of school when i was a junior...

    I also missed a lot of school when i was a junior and senior. I was healthy enough to make it through junior year, barely passing. My senior year half way through I was well over a month behind and...
  10. Thread: Scar tissue

    by MikeInMT
    Replies
    9
    Views
    6,319

    same here, i have had so many iv's in my armss...

    same here, i have had so many iv's in my armss was pretty rare for them to start one, then same with picc lines. I loved my port and wished I had gotten it several years sooner. (port was removed...
  11. Replies
    4
    Views
    3,931

    To put it bluntly it's a slow suffocation. I had...

    To put it bluntly it's a slow suffocation. I had a friend who passed away last year from cf. She was hooked up to all the machines and was pretty doped up on pain killers, so I don't think she really...
  12. I am Mike, all of us CFers go through rough...

    I am Mike, all of us CFers go through rough patches. Its great that you are seeking someone to talk to about your rough time. You have chosen a great place. You can message me anytime and I am more...
  13. Replies
    16
    Views
    4,904

    Everyone with CF goes through these stages, I...

    Everyone with CF goes through these stages, I would go on and off my meds for months at a time when i was in my teen's. I think I was in my mid 20's when I realized I better change my ways or I won't...
  14. The only restrictions the Dr's told me were: No...

    The only restrictions the Dr's told me were: No grapefruit, as it interacts badly with anti rejections, No Sushi, as a higher risk for bacterial infection, and lastly to not eat undercooked meat....
  15. Thread: Transplant

    by MikeInMT
    Replies
    15
    Views
    4,000

    The new lungs will not get infected with Cystic...

    The new lungs will not get infected with Cystic Fibrosis, as they were created "normal" without the defective Gene. 3 Days after the breathing tube was removed, I took off the oxygen, and 10 days...
  16. Thread: Transplant

    by MikeInMT
    Replies
    15
    Views
    4,000

    That is the closest transplant center to me, The...

    That is the closest transplant center to me, The CF doctor, before he retired, Dr. Accurso actually recomended I go to Seattle because of the amount of transplants done.
  17. Thread: Transplant

    by MikeInMT
    Replies
    15
    Views
    4,000

    I had my transplant done at the University of...

    I had my transplant done at the University of Washington Medical Center in Seattle. Denver is closer to where I live, but as you said the wait times are long. So I chose Seattle.
  18. Thread: Transplant

    by MikeInMT
    Replies
    15
    Views
    4,000

    A lot of things can determine the wait time, such...

    A lot of things can determine the wait time, such as location, blood type, lung size. I was on the list a total of about a year and a half. I have 3 "dry" runs before getting a set of lungs.
  19. Replies
    8
    Views
    5,280

    Up until I got real sick and was hardly eating,...

    Up until I got real sick and was hardly eating, this is how I gained weight.
    My older sister works for a protein company called BNRG, they sell protein shakes / bars, I never cared for the shakes,...
  20. Thread: Transplant

    by MikeInMT
    Replies
    15
    Views
    4,000

    No, don't apologize you can never ask to many...

    No, don't apologize you can never ask to many questions on a major surgery as this. To be honest I do not remember much of the first few weeks after surgery, as you will be on a lot of pain killers,...
  21. Replies
    8
    Views
    3,117

    I know how you feel. I had one thing after...

    I know how you feel. I had one thing after anither right up till transplant. I can't say it was easy or not stressful. It is enough to drive a person insane. But what I can tell you every bit of it...
  22. Replies
    7
    Views
    5,564

    In the 13 months since transplant I have had two...

    In the 13 months since transplant I have had two beers total. I drank way to much when I was 18-25ish. Am out of that phase, but now and then one sounds good and shouldn't hurt
  23. A year ago I was told from social worker at the...

    A year ago I was told from social worker at the university of washington medical center for some one with no form of insurance needs to have 500, 000 $ upfront before surgery. That number is less for...
  24. I am 13 months out from my transplant and have...

    I am 13 months out from my transplant and have yet to get a bill for the sugery. I have got statements of how much it was. The only medication I pay for out of pocket is magnesium oxide only cause...
  25. Replies
    1
    Views
    977

    When I was doing fund raising for my transplant,...

    When I was doing fund raising for my transplant, I found the best way to get the word out was social networking. Facebook was where 80% of my funding came from. Spam it up and ask friends and family...
Results 1 to 25 of 96
Page 1 of 4 1 2 3 4