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  1. Vanderbilt Pulmonary clinic in Tennesse anyone use them

    I am thinking seriously about switching clinics. I can never get my drs to call back or communicate with me after I leave their office.It will be a 5 hr drive though so I need it to be worth it.
  2. Orkambi drug interactions that were not listed

    Anyone have a interaction with Orkambi that a was not listed in their interactions list. If so what is it?
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    I started orkambi 9/3 been on it for 11 days. I...

    I started orkambi 9/3 been on it for 11 days. I went into the hospital for iv antibiotics because I knew it would be rough if I didnt. I am doing ok so far. I am tired, but i get that way on iv's so...
  4. I went to my clinic appointment today. I got all...

    I went to my clinic appointment today. I got all my orkambi paperwork done. My doc said Arkansas medicaid will not even think about paying until after the october meeting they are having. I also got...
  5. Anyone else have DILD from Ceftaz or bactrim

    I have some type of inflammation type reaction and wheezy breathing, coughing up blood after a few days of being on the drug( ceftaz and bactrim). I rarely cough up any blood, unless I have had a...
  6. My hospital stay went great this time around. The...

    My hospital stay went great this time around. The RT's were great let me do my nebs on my own without them standing over me. Their food wasnt great but plenty of it. The nurse's were awesome, all of...
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    Powerstrip cord awesome idea! and plastic bags...

    Powerstrip cord awesome idea! and plastic bags theirs don't have a tie string to tie to the bed.
  8. Anyone else have trouble with RT's while in hospital

    The last time I was in for a bowel obstruction I had trouble with the respiratory therapist treating me like I was a child. I was nauseated the whole time I was in. It is really hard to do treatments...
  9. Just from my experience each time I received...

    Just from my experience each time I received bactrim the side effects were worse. Mine were severe lung inflammation and coughing up blood ,anxiety. From what I've read it was called drug- induced...
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    I am a bit of a fabric hoarder myself,but have...

    I am a bit of a fabric hoarder myself,but have been too sick too make anything for my grandbabies. Hopefully I'll be better when i get done with this round of drugs
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    I probably will too Oboe. I can hope though, that...

    I probably will too Oboe. I can hope though, that I will care about decaf coffee and the crappy food.
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    What do you take with you when admitted!

    I want to take my coffee pot( a one cup) . All they have in there is coffee with caffeine. It makes me crazy, cant sleep at all. I have decaf & I am taking my coffee pot. It will make my stay a lot...
  13. I'll sign it I'm DDf508. I am at a 35 on PFT's....

    I'll sign it I'm DDf508. I am at a 35 on PFT's. All the antibiotics that the bugs are sensitive to I am allergic to. Any one else have this problem?
  14. Didnt culture MRSA this time why do my lungs feel worse

    I've cultured MRSA since 2010 I could tell it was there , but my last culture it didnt show up. I have been on oil of oregano on a month off a month for 3 months . I have Cepacia too . Ive had it a...
  15. So far the levaquin and vanc help . I have more...

    So far the levaquin and vanc help . I have more mucus since the MRSA & more inflammation
  16. I have had B cepacia for a long time . I started...

    I have had B cepacia for a long time . I started culturing MRSA in 2009 and have been having more problems since it came along.
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    I'll stop taking it after Im over this strep...

    I'll stop taking it after Im over this strep throat again. I take mine in capsule form
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    does anyone take oil of oregano every day

    I have been told by the guy at the health food store not to take oil of oregano all the time , but I don't think he quite understands my circumstances. Does anybody take it full time. It helps with...
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    Does cayston work on cepacia or mrsa. I could use...

    Does cayston work on cepacia or mrsa. I could use some help. I am on rifampin ,cipro, doxycycline right now . Only 3 more days of hell on my stomach and Ill be off of them. The drs think the mrsa is...
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    That is awesome !!

    That is awesome !!
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    Questions about PharmaNAC regarding CFRD

    I have been on pharmanac for about a 6 weeks now and Ive been having trouble with low blood sugars every time I use insulin now. Is it possible the pharmanac is helping my pancreas.
  22. Yes I switched from night time to day on taking...

    Yes I switched from night time to day on taking the levaquin . I take trazadone at night it helps with the sleep thing. My heart rate was 95 yesterday and my normal now after starting paxil is 80 ....
  23. Thread: Curcumin

    by regina65
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    I am going to start the tumeric again, but the...

    I am going to start the tumeric again, but the oil of oregano I take 2 to 3 capsules 3 x a day, I also take the pharmanac 3 x a day. I also took the tumeric 3 times a day .I know what youre saying...
  24. Thread: Curcumin

    by regina65
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    5,066

    I take the pharmaNAC in a small cup of water ....

    I take the pharmaNAC in a small cup of water . The oil of oregano are in gel caps from the health food store. (now brand). I have found that taking the oil of oregano before my meal keeps me from...
  25. Thread: Curcumin

    by regina65
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    I took it for a month .I cant remember what the...

    I took it for a month .I cant remember what the grams were on the bottle , but i took 2 to 3 a day . I got my pharmanac in and it was enough. I was breathing great until I got a cold . I tolerated...
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