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  1. Replies
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    Ditto on the AquaDEKs - I get vitamins free from...

    Ditto on the AquaDEKs - I get vitamins free from CF Care Forwards...mail my receipt when I order my CREON from Caremark and they mail me two free bottles. I called them today (CF Care Foward) they...
  2. Call PSI and CFPAF...numbers are at cfhelp.org ...

    Call PSI and CFPAF...numbers are at cfhelp.org

    You should be able to get them for free between your private insurance, PSI as secondary and CFPAF. Those are are un-insured, call CFPAF and ask...
  3. Thread: Yoga?

    by LeChampion
    Replies
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    13,682

    I've started doing Bikram "Hot" yoga...it's a 1.5...

    I've started doing Bikram "Hot" yoga...it's a 1.5 hour class in 105 degree studio...it helps with my joint pain. But I only do it once per week to avoid losing too much weight.
  4. Also amazon.com lets you dowlonad movies for 2/3...

    Also amazon.com lets you dowlonad movies for 2/3 dollars a down load and you can watch them for 7 days. That's how I watched Eva Markvoort's 65 Red Roses, instead of buying DVD I paid 2 bucks on...
  5. Here's a thought....netflix gives you first month...

    Here's a thought....netflix gives you first month free...sign up when you get admitted and cancel before you leave and won't get charged. If you are a hospital "frequent flyer" like me and get...
  6. Thread: ivs

    by LeChampion
    Replies
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    1,885

    Iv's wipe me out physically and make be have...

    Iv's wipe me out physically and make be have "brain fog" ...the worst I've ever been on was oral Flagyll when I had C-diff caused by the antibiotics..made me vomit, dizzy, foggy, emotionally wacked...
  7. Then you are extremely blessed, not all of us are...

    Then you are extremely blessed, not all of us are as lucky to have such a mild case of CF.

    Best of luck,
    <3
    Champ
  8. Your 72 and arguing with someone on an internet...

    Your 72 and arguing with someone on an internet message board....I have the sorry existence?
  9. Actually Bill, I have an Associates Degree in...

    Actually Bill, I have an Associates Degree in Information Systems, and am currently enrolled at a private university here in Virginia working on a BS degree in Management and Organizational...
  10. I guess we could list Printer/Bill as an...

    I guess we could list Printer/Bill as an annoying/gross thing that comes from CF?
  11. Coughing spasms that come before you realize you...

    Coughing spasms that come before you realize you are having one and sputum goes everywhere....have had this happen a few times, it's so embarassing.
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    YAY! Love, (L) "Champ"

    YAY!

    Love, (L)
    "Champ"
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    Awww, you poor old, bitter, un-happy man... ...

    Awww, you poor old, bitter, un-happy man...

    Hey! Maybe I will have the time also to sit in front of my computer and play on internet forums all day too!!!
  14. RX assistance programs / General Assistance

    Over the years I have run across all kinds of "goodies" that have made my life much easier. Other than my doctor visits and admissions, I really don't pay for my meds, even the co-pays after my...
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    I'm not a mom, 27 year old male, who just made...

    I'm not a mom, 27 year old male, who just made the work to non-work transition. I love it. I sleep in every day...do my meds and treatments, without rushing, so nice, usually hit the gym everyday,...
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    I agree 100% IF I really get to laughing I can...

    I agree 100% IF I really get to laughing I can get some huge chunks up and start coughing. Bad part is I am always around friends when this happens, so am a little less apt to hack, gag and spit. ...
  17. My clinic was chosen as a site, and I have heard...

    My clinic was chosen as a site, and I have heard the same thing...feb/march.
  18. Yes, I am DDF508. The drug is the drug combo of...

    Yes, I am DDF508. The drug is the drug combo of 770/809....Kalydeco and another drug. I am very excited. My doctor says even if this combo does not work, that within a few years she knows that...
  19. I will be in the study for this within a few...

    I will be in the study for this within a few months, my CF Care center was chosed for a clinical trial. I can't wait...The best part is even if I receive a placebo the last 6 weeks of the study...
  20. Thread: Disability

    by LeChampion
    Replies
    3
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    1,056

    Disability

    Just some words of hope to those applying....I had my interview on Nov. 1 and checked my bank account today and my payment was there...I was approved on the first try. So don't get discouraged it...
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    Ditto CFPAF, check www.cfhelp.org...

    Ditto CFPAF, check www.cfhelp.org

    Has lots of stuff for RX assistance, if you can hold out for 6 months you might be better off waiting for PCIP...also on the website I mentioned and it's good...
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    My family has always had a dog...and have had no...

    My family has always had a dog...and have had no problems. I also competively show horses and do well with that...with the exception of the dust and hay sometimes bothering me in our barn.
  23. I was a lot like you...I didn't need treatments...

    I was a lot like you...I didn't need treatments until I was about 16...I fought it. Then realized how bad I felt if I didn't do them...that's why I do them now, if I miss a treatment, I will feel...
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    Bill, you are a complete ass. I admittedly do...

    Bill, you are a complete ass. I admittedly do not read the boards very much, but every time I do, and I see a comment of yours, it always possesses a condescending undertone. I think you are one of...
  25. Thread: Body Ache

    by LeChampion
    Replies
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    2,175

    Body Ache

    Does anyone else experince body ache...almost constantly with their CF? My legs, knees, and shoulders ache all day. A gluten free diet does seem to help, but I hate it. Has any one's doc given...
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