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Type: Posts; User: ljberk

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    Thanks Kenna2. I think this might really work...

    Thanks Kenna2. I think this might really work for him. About a year back I had heard about this med and told my son. He brought it up to his doctor and the doctor said it was "too dangerous", or...
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    Ideas for recurring hemoptysis

    Hello All -
    I'm a mom to a 29y/o w/DD508. He is living his life with more than a few challenges, but living nonetheless. He has pancreatic insufficiency (of course), CFLD and CDRD. All of these...
  3. Hi Lilly! I remember you. Boy, it was a long...

    Hi Lilly! I remember you. Boy, it was a long long time ago! Glad to hear he is ok and that you like Dr. Rao. That will be my son's dr. too. Quick Question: Do you know or can you ask your son if...
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    New Mexico CF centers

    Hey UK Traveler!
    I live in El Paso, Texas which is about a 4 hour drive from Albuquerque. One time we had occasion to need CF care there. We found the care excellent. My son was a child at that...
  5. Anybody a patient at USC CF Center in Los Angeles?

    Hello folks,
    My dear 27 year old son w/ CF, CFRD CFRLD has recently planned to move to LA. It is probably for the better because we don't have a CF center here where we live and he was still seeing...
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