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  1. Replies
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    Changing your user name?!?!?!

    Hi, I have emailed the contact us" option on this website a handful of times about how I go about changing my username and I still have gotten no response. What Im wondering is if its possible to do...
  2. Thanks guys so much! It was all very helpful!

    Thanks guys so much! It was all very helpful!
  3. Traveling to Disney with CF, Vest, and Portable O2 concentrator?

    Hi, Im 25 with a moderate/severe CF. Over the winter I got pretty sick, I was sick all winter long with a pretty bad infection and pneumonia. Before the winter I was only on supplemented O2 when I...
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    Hi, I have hypoglycemia too. My doctors didnt...

    Hi, I have hypoglycemia too. My doctors didnt take me seriously at first because it would just drop at random and they couldn't monitor something that didnt happen in front of them......but i tried...
  5. Hi, CF sucks lol I totally get where you are...

    Hi, CF sucks lol I totally get where you are coming from though. My PFTs aren't as low as yours yet, sorry for the wording-mine are like 37% average. Has been much lower to. Im from North Dakota, so...
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    Thank you, and yes thats what the number is but i...

    Thank you, and yes thats what the number is but i havent done that in years just never got around to changing my name on here. Thanks!
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    Help please!!!

    Im experiencing extreme sharp pains in one area of my chest and nothing is helping!!! Its worst when I cough. Im wondering if its a collapsed lung, never had one before. Please let me know if you...
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    My hospital is crap too! Its an hour away from me...

    My hospital is crap too! Its an hour away from me to and they are completely useless!!!! I started crying when I read you post because all the words you were saying I say on a daily basis. This is...
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    Need some CF friends!!!

    Hey guys,

    My name is Megan and I am 24 years old with CF, diagnosed at 6 months. I have one CF friend which I love to death but I feel so lonley still. I absolutly love talking to other CFers and...
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    Hi, my name is megan lol and I am 24 with CF. I...

    Hi, my name is megan lol and I am 24 with CF. I had the nissens done around that age of your daughter. The scars are so microscopic, they are almost hard to find. Its like four teeny dots for scars....
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    Financial Help/Non-profit Orginizations!

    Hey guys, I need help lol yet again. I am struggling extremely bad with my finances. I cant work because I'm in the hospital at least every other month sometimes once a month. I have always struggled...
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    oh my goodness, im totally tearing up. I hope...

    oh my goodness, im totally tearing up. I hope your brother makes it through this!!! Do me a favor and NEVER forget her, it sounds like she didn't have a lot of ppl and that one thing I feel I need...
  13. Thread: Rude Staff

    by megan420
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    I can relate big time!!! I always say thank you,...

    I can relate big time!!! I always say thank you, sometimes twice to the same person just for that action lol. I think I can be a very likeable person/patient, I love talking with the nursing and...
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    I am struggling with this same problem; Im almost...

    I am struggling with this same problem; Im almost 24 with CF. I was diagnosed at 6 months at the hospital I go to right now but the problems Im having are just getting worse and more frequent. My...
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    Thanks guys, im just so torn bc Ive been going to...

    Thanks guys, im just so torn bc Ive been going to this hospital since I was diagnosed. And I usually go to Minneapolis as much as I can, but with winter and money costs its hard to get there :( I...
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    Isn't the star CFer in Foreverland the brother on...

    Isn't the star CFer in Foreverland the brother on "Bates Motel"!!!!!!!!!!!!
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    Please help me!!!!

    Hi guys, Im having a really tough time with something. My regular doctor recently retired and Im left with getting a new doc and this nurse practitioner that used to work real close with my doctor....
  18. Thread: Hearing loss

    by megan420
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    Hi hun, I too suffer from hearing loss. almost...

    Hi hun, I too suffer from hearing loss. almost 50% of my hearing is gone and its all because I took Amikacin as well. I am very sorry to hear bout your problem but i would agree with beautiful soul...
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    New series has cf girl in it!!

    EVERYONE!!! The new series THE BATES HOTEL, based off ofthe movie Psycho! Never seen the movie but my boyfriend has and we startedwatching the Bates Hotel and in the second episode, just played,...
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    Hi everyone! I was so excitted to see that my...

    Hi everyone! I was so excitted to see that my topic got 37 replies, I thought no way! Now that Ive read through them all , Ive gotta say im a lil dissappointed at the fighting!! Some one mention that...
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    2. When Im in the hospital being pumped full of...

    2. When Im in the hospital being pumped full of liquids and Im on my daily mirlax my s*** is legit water!!! Its nasty and guess what, stains my undies....plus I sometimes wake up in the middle of the...
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    Maybe itwould help if I started! 1. I have a...

    Maybe itwould help if I started! 1. I have a feeding tube and the s*** that comes outaround the skin whole is so nasty n gooie n stinks....then to top it off itstains any freaking peice of clothing...
  23. 2. When Im in the hospital being pumped full of...

    2. When Im in the hospital being pumped full of liquids and Im on my daily mirlax my s*** is legit water!!! Its nasty and guess what, stains my undies....plus I sometimes wake up in the middle of the...
  24. Thank you tho for commenting! Maybe it would help...

    Thank you tho for commenting! Maybe it would help if I started! 1. I have a feeding tube and the s*** that comes out around the skin whole is so nasty n gooie n stinks....then to top it off it stains...
  25. Gross, embarrassing things that come with CF!

    Hey guys! Iím working on a book about CF coming from anangle most know none about! But I need some help. I need some more ideas on thegross, maybe embarrassing moments or things that come along with...
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