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Type: Posts; User: CFParent2

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  1. Talked with Vertex, they said they are still...

    Talked with Vertex, they said they are still going to pursue FDA approval for Kalydeco. I asked a ton of questions but failed to ask how they were going to proceed and the time frame. I will let...
  2. Found a report that said the study failed?!!! ...

    Found a report that said the study failed?!!! Typical, the business people read the first line of a technical report and made false conclusions. The drug worked and still failed the primary...
  3. More related info to the Vertex (Kalydeco) Ivacaftor R117H study

    Did some additional research. I found a study of G551D with kids less than 12. Those kids had a mean baseline FEV1 of 84.2 18.07 This is 11 percent worse than the ...
  4. Vertex Ivacaftor R117H Study Results -Fixes everything that CF breaks for this group

    Is it just me or was this study poorly defined, providing misleading results?

    I understand this was a difficult study to perform with so few participants, but it should have been tailored to the...
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