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  1. Thread: Sleep Apnea

    by scanboyd
    Replies
    0
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    849

    Sleep Apnea

    I am 9 months post double lung transplant.
    Recently diagnosed with severe obstructive sleep apnea. Did not have prior to transplant. Any one else have this issue?
  2. Thread: Sleep Apnea

    by scanboyd
    Replies
    0
    Views
    355

    Sleep Apnea

    I am 9 months post double lung transplant.
    Recently diagnosed with severe obstructive sleep apnea. Did not have prior to transplant. Any one else have this issue?
  3. Replies
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    6,753

    I worked in Nuclear Medicine for 35 yrs. Went...

    I worked in Nuclear Medicine for 35 yrs.
    Went to Duke.
  4. Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus

    Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is administered in how much saline or distilled water....
  5. Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus

    Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is administered in how much saline or distilled water....
  6. UT Southwestern Dallas Tx. Great place for...

    UT Southwestern Dallas Tx.
    Great place for having Lung Transplant!
  7. Replies
    6
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    2,810

    Thanks Bill! All is good 5 wks post. Fev1 is 95%...

    Thanks Bill! All is good 5 wks post. Fev1 is 95% walking 2 miles Stats 98-99 Hr. 87. Now to see if this old body can keep up with these new lungs. Amazing to be able to breath with ease! No Neb RX!...
  8. Replies
    6
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    2,810

    70 Yr. Old Double Lung Transplant Done

    I recently had a double lung transplant. My fev1 prior to surg. was 19, 3 wks post surg. it is 72.
    Doing great otherwise. Just a little sore. I was placed on the transplant list Dec. 27 2017. Had my...
  9. How Old Were You When You had Your Lung Transplant Done?

    My sister who is now 17 yrs. out had hers done when she was 50. Now 67 and doing great!
    How far out are you from transplant?
  10. What was your age when you had your double lung transplant?

    My sister with CF had a double lung transplant at 50. yrs. she is now 17 yrs. out and doing great.
  11. How old were you when you had your lung transplant?

    My sister with CF had a double lung transplant at 50. yrs. she is now 17 yrs. out and doing great.
  12. Replies
    7
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    2,682

    Go for your grad school if so desire. I will be...

    Go for your grad school if so desire. I will be 70 next month. After workeing in Nuclear Medicine at the same Mdical ctr. for 35 yrs. I retired to take better care of my CF on encouraging words from...
  13. Replies
    8
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    2,782

    I stopped when I as 57 and my FEV 1 was 28%, had...

    I stopped when I as 57 and my FEV 1 was 28%, had worked 35 yrs. in a hospital in Nuclear Medicine days nights wkends. and on call 24hrs. at a time. My Dr. and my wife both strongly wanted me to...
  14. Replies
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    3,587

    Agree reinfecting ones self would be a concern of...

    Agree reinfecting ones self would be a concern of mine.
    I sterilize all of my neb equipment between neb. Rx. Using disposal mask is the way to go for me. Luckily I have not had a Iv antibiotic in...
  15. Replies
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    Washing hands as you already do and use hand...

    Washing hands as you already do and use hand sanitizer if you shake hands with someone .
    Use paper towel to open and close public bathroom doors.
    One thing I do is sterilize my nebulizer after...
  16. Thread: Exercise

    by scanboyd
    Replies
    6
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    1,502

    Good morning ladies. Working out takes time and...

    Good morning ladies. Working out takes time and is not easy when you have a low Fev1. This will help us post pone as well as get through the transplant and speed up recovery time they say at UT...
  17. Replies
    9
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    3,384

    Hello Julie61554 Your and my status sound some...

    Hello Julie61554
    Your and my status sound some what alike. My FeV1 is between 23-25, resting sats 97-98. With 6 min walk sats drops to 96 at 3 min. I use O2 at night none during the day. I have...
  18. Replies
    280
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    54,326

    Great Ratatoska, sounds like Orkambi is helping...

    Great Ratatoska, sounds like Orkambi is helping you son. Praying this continues.
    I have noticed a increase in clear drainage from my nose. The mucous coming out of my lungs is definitely thinner? I...
  19. Replies
    280
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    54,326

    I decided to stop my Neb. Colistin because of the...

    I decided to stop my Neb. Colistin because of the significant bronchospasms. I noticed a improvement in one day, now at day 2 bronchospasm completely gone. So I will for the time being just Neb....
  20. Replies
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    1,217

    If you look straight down on the top you can see...

    If you look straight down on the top you can see the raised edge to flip up. I have not had any problems. Good luck.
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    1,217

    It has a raised edge about 3/8 inch. long, run...

    It has a raised edge about 3/8 inch. long, run your fingers around the top outside edge. There is writeing saying "flip up" on top. Where it is written flip up, that is where you flip up and peel...
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    8
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    1,217

    For me it is easier. You have to flip the correct...

    For me it is easier. You have to flip the correct side of the blue cap.
  23. Replies
    280
    Views
    54,326

    I am trying something a little different. I am...

    I am trying something a little different. I am doing a albuterol Neb RX before and after the Orkambi dosing and Colistin Neb. It seems to help today because I was able to go to the gym for 1&1/2 hrs....
  24. Replies
    280
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    54,326

    DJ, good for you! As you know exercise is very...

    DJ, good for you! As you know exercise is very important for us Cfers. I go to the gym 3 times a wk. doing 11/2 hr. Or more Work out each time. I am not able to do treadmill any more because of...
  25. Replies
    280
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    54,326

    I have taking Neb Colistin for several yrs. with...

    I have taking Neb Colistin for several yrs. with out any issues until yesterday. I started Orkambi 23 days ago and have been on Cayston until yesterday and switched to Colistin. Had increasing sob...
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