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    Wow - congratulations. I know you did a lot of...

    Wow - congratulations. I know you did a lot of sports/riding. I hope you can get back into that.
  2. Javier, Welcome to the CF forums! I'm sorry...

    Javier,

    Welcome to the CF forums! I'm sorry about your son's diagnosis but glad you found this website and that your son is doing well and with perhaps a milder presentation of the disease.

    As...
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    Thanks for sharing the sad news and that...

    Thanks for sharing the sad news and that beautiful article.
  4. Snailj12, CT scans are certainly more detailed...

    Snailj12,

    CT scans are certainly more detailed than x-rays, but if the x-ray is clear, that is a good start. In my case, an x-ray when I am feeling well shows a "small hazy pnuemonia" that the...
  5. Have you tried Zumba, Bangra masala, Nia, dance...

    Have you tried Zumba, Bangra masala, Nia, dance fitness? I spent years trying to be a runner but my personality and knees just aren't geared for it.

    In contrast, music and varied body movement...
  6. I just wrote up a summary of some new research...

    I just wrote up a summary of some new research out on ivacaftor - g155d mutation and 12 people in the study. Nonetheless, a long study looking at inflammatory markers, mucus plugging and perhaps most...
  7. SchonLift, I'm guessing you don't drink...

    SchonLift,

    I'm guessing you don't drink alcohol as that would mess up your blood sugars, too, but I figured I mention just in case -- even small amounts of alcohol can raise triglycerides. I have...
  8. I lost my post a couple of times because my phone...

    I lost my post a couple of times because my phone screen was sweaty or something :)

    Anyway, I was trying to say that an improvement in breathing lags for me. I get past the extra green mucus and...
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    Wow - interesting and scary. Thank you for...

    Wow - interesting and scary. Thank you for sharing.
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    M. Abscesses and dentists in the news

    M. Abscessus risk in dentist offices in news..

    http://www.npr.org/sections/health-shots/2016/09/30/495802487/infection-outbreak-shines-light-on-water-risks-at-dentists-offices
  11. OP, Sites that deal with health conditions...

    OP, Sites that deal with health conditions usually have a painful history of people who've joined with an invented story to ask for money. Suspicion is wisdom from experience. It's not personal.
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    mom2two, Wow! That is yikes! Good job to your...

    mom2two,
    Wow! That is yikes! Good job to your eye doctor. And sorta impressive about your super compensating eye. So glad it doesn't have to do all that extra work anymore.
    Does your doctor or you...
  13. Wow, I'm guessing you don't cough all the time?...

    Wow, I'm guessing you don't cough all the time? When my kids were little, that was how they found me in the house. :)

    It doesn't sound like you have been lying to them e.g. "I am just going to the...
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    LL, Oh no, I am so sorry you had all that...

    LL,

    Oh no, I am so sorry you had all that happen to you - a concussion and eye problems. No one needs that, but on top of the chronic stuff you deal with, it's not fair of the universe at all :( I...
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    Love, CF and transplants

    The Modern Love column of the New York Times last week has a personal essay by someone with CF, who received a transplant and talks about the experience and it's impact on his marriage. I thought it...
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    Aaah, I remember such shenanigans also lol. In...

    Aaah, I remember such shenanigans also lol. In addition to the term "walk of shame," there should also be the term "burst eye vessel of shame."
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    Eye pain from coughing ?

    Last week, I either caught something nasty from the ER (I was there for a family member) or the stress of it all made me get sick. Either way, I've had a fever and one of those itchy convulsive...
  18. Hi - I hope you and your sons are doing well too!...

    Hi - I hope you and your sons are doing well too! Welcome back
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    You're welcome!

    You're welcome!
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    NSAIDs inhibit ovulation

    I think this is worth posting in the Pregnancy forum, as people with CF are often put on a regimen of Ibuprofen. It was not one of the three NSAIDs tested, but it's perhaps relevant nonetheless,...
  21. I'm so sorry - yet so glad you have some answers....

    I'm so sorry - yet so glad you have some answers. Getting the right treatment and routine of care going at a young age is such a benefit!

    There are several of us on cysticfibrosis.com who don't...
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    I think dust and post nasal drip can cause throat...

    I think dust and post nasal drip can cause throat clearing. I also think asthma cough can improve with just one more Xopanex treatment.

    Either theory is valid...possibly both. :)

    To add more...
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    My asthma is atypical like Amy's in the post...

    My asthma is atypical like Amy's in the post above. I have been on some type of inhaler for almost 30 yrs: as a teen albuterol as needed and oral steroids here and there, in parts of my twenties...
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    Unless you accidentally changed the settings of...

    Unless you accidentally changed the settings of age/sex/height between tests, I also can't see how a higher score could be an error. Lower scores -- yes -- from air leaking out the corners of your...
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    I'm guessing you've looked into allergies...

    I'm guessing you've looked into allergies already? How about bronchiectasis? It's chronic, usually purulent aka not clear, mucus from infection and damaged airways in the lungs.

    I was a severely...
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