Search:

Type: Posts; User: Rebjane

Page 1 of 20 1 2 3 4

Search: Search took 0.05 seconds.

  1. We are only allowed one every 6 months and have...

    We are only allowed one every 6 months and have to pay a copay on that(it's so stupid) We use 8 separate nebs a day. We used to get 2 a month(got a script) but a couple years ago even with the...
  2. Replies
    1
    Views
    377

    Inhaled Vanco vs Zyvox

    Interested if anyone does inhaled Vanco and how that goes for them? It was brought up at an appointment last visit. Zyvox is the antibiotic of choice we use for exacerbation but this was brought up...
  3. Replies
    4
    Views
    339

    Would like to add the chore I hate most is...

    Would like to add the chore I hate most is cleaning the nebs not sure why but it's just one more thing; the pressure cooker we have cost about $100 and needs to be replaced every couple years from...
  4. Replies
    4
    Views
    339

    Cleaning neb on college dorm?

    Wondering how you all handled neb sterilization in college dorms? Currently we use a pressure cooker to boil nebs at home. When we travel we use a microwave with those steam bags. Also use...
  5. Replies
    3
    Views
    501

    We get our Hypersal free at Foundation Care...

    We get our Hypersal free at Foundation Care Pharmacy with every order of Creon. It's a promotion. We recently switched to this to decrease the $ we spend on copays. Does your son do Hypersal 3...
  6. Is your son taking Creon as an enzyme? I found...

    Is your son taking Creon as an enzyme? I found this promotion from Foundation Care Pharmacy(mail order pharmacy) that for each order of Creon you get a free box of 7 % Hypersal. I switched my...
  7. How old is your daughter? My daughter has had...

    How old is your daughter? My daughter has had terrible constipation as well. Our CF doc had to consult with a GI doc who was familiar with CF for input. Has your daughter had a belly Xray? When...
  8. Replies
    7
    Views
    2,280

    I think every child and adult with CF is...

    I think every child and adult with CF is individual. The waiting for results is the hardest part. For CF; they are making such progress with treatment the outlook is very hopeful. Hoping you get...
  9. Replies
    5
    Views
    1,364

    Thank you all for your wonderful input! I think...

    Thank you all for your wonderful input! I think as long as there is good air circulation(outside) it's worth a try. She is so creative and I want to continue to encourage this:)
  10. Replies
    7
    Views
    2,280

    https://www.cff.org/What-is-CF/Diagnosed-With-Cyst...

    https://www.cff.org/What-is-CF/Diagnosed-With-Cystic-Fibrosis/

    Found this on the CF website lots of good info.
  11. Replies
    7
    Views
    2,280

    Hope it's not CF but definately needs to be...

    Hope it's not CF but definately needs to be addressed and ruled in or out. When is her appointment with the CF doctor? A sweat test is a test they can do as well as blood work for looking for the...
  12. Replies
    5
    Views
    1,364

    Painting and CF ( artistic CF input):)

    Wondering about recommendations for paints that will not irritate CF lung? My daughter has a strong artistic streak(very therapeutic and relaxing for her ) She was asking for high quality acrylic...
  13. Replies
    10
    Views
    2,116

    Have you spoken to Hill Rom? I spoke with...

    Have you spoken to Hill Rom? I spoke with someone at HillRom with that exact same concern because I did not want to get the Monarch if we could not still keep the Hill Rom 105. They reassurred me...
  14. Replies
    10
    Views
    2,443

    These are the types of heavy duty compressors I...

    These are the types of heavy duty compressors I am looking at. Pretty expensive, the one from Precision Medical looks similar to the Mobilaire.
  15. Replies
    10
    Views
    2,443

    http://www.precisionmedical.com/homecare/air-compr...

    http://www.precisionmedical.com/homecare/air-compressors/pm50-easycomp-compressor
  16. Replies
    10
    Views
    2,443

    https://www.vitalitymedical.com/50-psi-compressor....

    https://www.vitalitymedical.com/50-psi-compressor.html?matchtype=&network=g&device=c&adposition=1o2&keyword=&gclid=Cj0KCQjw3KzdBRDWARIsAIJ8TMRJPnGcFG7jOQWNK6suVmGDzc7tBqfcVhtS-xiGScQRaOHkp09V2OcaAsevE...
  17. Replies
    10
    Views
    2,116

    The RT at our CF Clinic helped us with the...

    The RT at our CF Clinic helped us with the paperwork from Hill rom for the Monarch. Has your son had the opportunity to try on a Monarch to see if he likes it? I feel like it is better suited for a...
  18. Replies
    10
    Views
    2,443

    thanks, I cleaned the inside of the compressor...

    thanks, I cleaned the inside of the compressor as there was alot of dust in it. Works better this morning. But I am still looking at how to get a new compressor that is similar. insurance compnay...
  19. Replies
    10
    Views
    2,443

    Mobilaire 50 PSI compressor

    Any recommendations for a new Mobilaire 50 PSI compressor. We have had ours for over 3 years and the pressure gauge is not acting right, nebs taking longer. This is the first time this has...
  20. Replies
    10
    Views
    2,116

    Surprised insurance did not fight us but she has...

    Surprised insurance did not fight us but she has had the Hill rom for over 10 years. we have a copay for rent to own, 20% of cost for 15 months til we meet our deductible. Monarch is very heavy;...
  21. Replies
    10
    Views
    2,116

    we got one. My post just got lost.

    we got one. My post just got lost.
  22. Replies
    9
    Views
    3,412

    I would definately readdress this with his doctor...

    I would definately readdress this with his doctor and his nutritionist. Is he gaining weight ok? Does he need his enzymes adjusted? Could he be constipated? From a young age; I gave my daughter...
  23. Replies
    4
    Views
    2,734

    Sorry I wanted to see if that post ok. Anyway, ...

    Sorry I wanted to see if that post ok. Anyway, Good hand washing and getting vaccinations is important. Flu shots every year for everyone in the family. Herd immunity and all. :).. I carry Purell...
  24. Replies
    4
    Views
    2,734

    I had written a post and it disappeared. Anyway,...

    I had written a post and it disappeared. Anyway, i have a daughter with CF. She is 15. in fact she has never had a sweat test because she was tested genetically. I get the worry part. It's part...
  25. Replies
    2
    Views
    939

    As a follow-up they did give my daughter the...

    As a follow-up they did give my daughter the incorrect dose. She was supposed to get 75 grams(not the 100grams). She still is impaired glucose tolerance, but just an FYI..
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4