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Type: Posts; User: Jeannie85

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  1. Thread: F508 & d110h

    by Jeannie85
    Replies
    31
    Views
    9,003

    She has never had an exacerbation. She has only...

    She has never had an exacerbation. She has only be in antibiotic for ear infections. She plays and runs with the kids in her class without trouble breathing. I’m always interested to hear others...
  2. Thread: F508 & d110h

    by Jeannie85
    Replies
    31
    Views
    9,003

    My 5 year old daughter has d110h and delta508....

    My 5 year old daughter has d110h and delta508. She has been healthy other than kid stuff like colds due to being in school. Last year she had recurring ear infections but then got tubes placed and...
  3. Thread: F508 & d110h

    by Jeannie85
    Replies
    31
    Views
    9,003

    I do not understand what you are asking. Could...

    I do not understand what you are asking. Could you try to rephrase it?
  4. Replies
    11
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    13,343

    I don't have info on your mutations regarding...

    I don't have info on your mutations regarding Kalydeco but we just go ours in the mail yesterday for my 4 year old daughter. She took the first dose last night. Our insurance (thru my husband's...
  5. Replies
    22
    Views
    7,175

    Hi, thanks for your response Jricci! We are...

    Hi, thanks for your response Jricci! We are still waiting for the pre authorization and insurance "stuff"
    It is frustrating and I am patiently and anxiously awaiting answers. I pray that Kalydeco...
  6. Replies
    22
    Views
    7,175

    My daughter just had her eye exam today and it...

    My daughter just had her eye exam today and it went well! Now we just wait for the rest to process. I'm getting nervous about her starting Kalydeco. I have high expectations for this to be the...
  7. Replies
    22
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    7,175

    Thanks for all the responses! I was informed...

    Thanks for all the responses! I was informed about the liver levels needing to be checked q3months. Also have an eye exam scheduled to check for cateracts. But the doctor never mentioned getting a...
  8. Replies
    22
    Views
    7,175

    Hi everyone. My daughter has D110H and will soon...

    Hi everyone. My daughter has D110H and will soon be starting kalydeco. She is 4 and has never been on antibiotics or been hospitalized. She only has cultured staph. Her doctor said now is the time...
  9. Replies
    3
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    1,928

    Thanks for the input you guys!

    Thanks for the input you guys!
  10. Replies
    3
    Views
    1,928

    Allergies? Or habit?

    Looking for any insight or opinions....my 4 year old daughter for the last few weeks has been sniffling. It's a dry, quick in and out breath, thru the nose. Never is runny or wet. She does it on and...
  11. Replies
    26
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    5,789

    My daughter who is soon to be 4, sweats while she...

    My daughter who is soon to be 4, sweats while she sleeps. My husband and I also sweat at night. Not excessively. I also wondered if it was a cf thing or just "normal "
  12. Replies
    13
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    4,123

    I would totally be nervous and worry about my...

    I would totally be nervous and worry about my daughter even if she didn't have cf. I'm just a worrier, always have been. I met the principal, and 4K, and kindergarten teacher on saturday. They were...
  13. Replies
    13
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    4,123

    I'm sending my daughter to 4K this fall and have...

    I'm sending my daughter to 4K this fall and have to enroll her coming up in a week. She wants to go and loves the idea of it but I am hesitant. I know I can't keep her in a bubble but she has been...
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