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  1. What to do for stay at home work?

    I love to teach but it's hard when I'm sick. I don't like to be around preschool age kids and get really tired. I am curious to know what kind of stay at home work there is that I can do without...
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    Thanks for the article!

    Thanks for the article!
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    Try doing exercise. Work up to 30 minutes. I do...

    Try doing exercise. Work up to 30 minutes. I do my best between hospital stays. Eat right. Do things that make u happy. Odd thing but do anything to lift yourself is happy.
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    Coughing up blood

    I hardly ever cough up blood. I have been on Ivs for 9 days and improving. I just started cayston again. Tonight I coughed up blood for a couple of minutes and that was the only time. What does this...
  5. I will try! How long do you wear this?

    I will try! How long do you wear this?
  6. Coughing alot but no need for hospital. need tips/ advice on how to control it.

    I am in almost in need of a lung transplant. I don't use oxygen at home because my doctor said i don't need it and my oxygen level is still high when they do the 6 minute test. my lung functions are...
  7. I know his you feel. Others mean well but don't...

    I know his you feel. Others mean well but don't realize how they come across. Unfortunately these words stick with us and Alter relationships. I was trying to express my worries and concerns about...
  8. I'm on disability. I live at home with parents...

    I'm on disability. I live at home with parents who are retired and now on a fixed income. They would help if needed but I would rather not since they have a limited income. I know I can't work after...
  9. Ask her questions. Talk about what you and her...

    Ask her questions. Talk about what you and her feel about anything and everything. Respect her feelings when she doesn't want company while she is sick. But when she does want company bring her a...
  10. Pleas help! Need to switch jobs to be healthier

    I am very close to having to a lung transplant. I got all the testing done to get prepared. Now it is a wait and see. The doc dropped a bombshell and recommended that I don't teach preschoolers any...
  11. How long do you do your Iv meds?

    How long do you do your Iv meds?
  12. Have a little fun question for your worst day being hospitalized

    what is the worst day of doing hospital/iv meds? is your least favorite day your the first day of being admitted to the hospital. being released from the hospital to do home ivs or the last day of...
  13. Guess I made me sound worse than I really am . I...

    Guess I made me sound worse than I really am . I have talked to conselers and physiocist in the past And they said I have a good grip on things. I guess my point is that I get frustrated because when...
  14. On the per issue, having a pet is discouraged for...

    On the per issue, having a pet is discouraged for those who are close to a long transplant for sanitary reasons.
  15. I know my parents want to do anything for me and...

    I know my parents want to do anything for me and have discussed my thoughts about spending their money on me. I can't stop feeling guilty and thankful. I feel guilty that they spend their limited...
  16. How do you make money then if you aren't working?...

    How do you make money then if you aren't working? I hate the feeling that my parents are spending their retirement funds on me. They should spend their money but on them. Their budget is for them...
  17. what to do when i get frustrated/sad/discouraged

    Since I'm so close to needing a transplant, I have been doing more hospital rounds and Iv rounds at home. I have done the iv rounds about 15 times in about 2 1/2 years. once i start getting my work...
  18. your experience is what i am looking for. every...

    your experience is what i am looking for. every visit seems to be a stressful event because of something i said in earlier post or like what you go through. i am thinking why does every visit have to...
  19. doctor visits feel like a fight. something always happens. what is your visits like?

    Does anyone feel like they "fight the system" everytime they go? I always think things go wil go smoothly but they don't. Here is what i am talking about. i just get so tired of dealing with trying...
  20. The earliest signs of infection?

    I don't know how to explain this. I'm not sick but I feel like I'm going to get sick. It's like the beginning of an infection. Ie I'm starting to feel tired and not hungry. It's getting harder to...
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    Check to see if you have allergies and get shots....

    Check to see if you have allergies and get shots. These help me. Exericse as much as you can even if its cleaning house or walking in your driveway.
  22. frustrating test for lung trasnsplant

    very FRUSTRATED with my the person who scheduled my test for lung transplat test. she told me to fast when i didn't have to, forgot to give and orderor a test, she gave me the test without the...
  23. Been thinking about that myself. I actually said...

    Been thinking about that myself. I actually said that I'm not looking for advice and when I do I will ask. She was alittle offended and said she wouldn't give me advice at all.
  24. That's why I like coming here. Everyone...

    That's why I like coming here. Everyone understands.
  25. My parents are in their 60s and in not so best of...

    My parents are in their 60s and in not so best of health either. I do want them around when someone is consultanting me but I don't really expect them to be there for the small stuff. I do love and...
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