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Type: Posts; User: Incomudrox

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  1. Thread: Leaving

    by Incomudrox
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    122
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    7,972

    Leaving

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i> HI Frank 'People like me?' what do you mean? Actually, I am not making any assumptions, I am speaking about what I am...
  2. Thread: Leaving

    by Incomudrox
    Replies
    122
    Views
    7,972

    Leaving

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>dasjsmum</strong></em> I agree with Bill, this conversation should have been had in privacy. In my opinion Jonothan and Frank could...
  3. Thread: Leaving

    by Incomudrox
    Replies
    122
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    7,972

    Leaving

    That would be incorrect.
    As HOLs are through TechCF (non-profit) and ML Burke DBA Medrise is a for profit company. There can be no direct interaction for benefit through a non-profit to help a...
  4. Thread: Leaving

    by Incomudrox
    Replies
    122
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    7,972

    Leaving

    Jeanne,

    If you're going to tell stories tell the whole story. Please.

    Frank & Jonathan
  5. PFT Goal's thread. Trying to achieve 60% FEV1.

    Just wanted to let all of my followers know Havoc and I are now at CF2Chat for the time being. Come join us there!
  6. Thread: Leaving

    by Incomudrox
    Replies
    122
    Views
    7,972

    Leaving

    Until we both have our project and forum done we will be at CF2CHAT. Come find us there.
  7. Thread: Leaving

    by Incomudrox
    Replies
    122
    Views
    7,972

    Leaving

    If you contact one of us we will email you when the new forum is active.
  8. Thread: Leaving

    by Incomudrox
    Replies
    122
    Views
    7,972

    Leaving

    Since not all of you read my threads, but do read my posts. I to second everything Jonathan has already said. My blog is incomudroxcf.blogspot.com and my email is [email protected] Until the new...
  9. PFT Goal's thread. Trying to achieve 60% FEV1.

    To all of my followers:

    I will no longer be participating in this forum for unfortunate reasons. If you wish to follow my progress and advise you can refer to my blog which I will start updating...
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    Final phase 2 results

    There is a thread 3-4 posts down from this.
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    Zithromycin Mon wed and fri

    It is something you need to talk to your doctor about and weigh the pros and cons.
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    Zithromycin Mon wed and fri

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>musclemania70</strong></em> I heard that it was used as an anti-inflammatory agent in CF patients. ?</end quote>
    Yes and this is...
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    Zithromycin Mon wed and fri

    <a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC90577/">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC90577/</a>

    <div class="fm-sec half_rhythm no_top_margin">
    <h1...
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    Want to donate VEST

    You do not own the right to give away your Vest if the insurance company paid for it. They own it. You do NOT own it. Further more do not post your phone number on public websites.
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    Zithromycin Mon wed and fri

    Azithromycin is not used to increase FEV1. Azithromycin, even though it is an antibiotic is not used as an antibiotic in Cystic Fibrosis patients. Azithromycin is used in CF patients because it...
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    Results of OGTT...

    Those numbers are perfect. No reason to worry. Get a good diary and see a endo if you and the docs are still worried.
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    medicare eligibility

    So you agree that you can get it, but yet you say its and quote "Medicare is unavailable until you are 65. ". So which is it? (I know) but way to contradict yourself. As long as you have enough...
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    medicare eligibility

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RytheStunner</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandyn</b></i> Medicare is unavailable until you are...
  19. PFT Goal's thread. Trying to achieve 60% FEV1.

    FEV1 remains unchanged. Small airways gained 2% on of my shorter exhalation times. Better luck next time. At least there was no horrible decline. Docs agreed to a sweat test it's July 16th. It does...
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    hypertonic saline Can you feel it?/

    HTS is harsh and can cause soreness. That makes sense.
  21. Dont know why I do not recieve any emails

    I am confused as to what the problem is. Are you trying to make another user name? All of your profile credentials that I can see say you're from PA... etc...
  22. PFT Goal's thread. Trying to achieve 60% FEV1.

    Clinic today!!! Yeah Boiiiii!!!!!!!!!!
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    Really scared...

    To the OP, it has been brought to my attention that your child has been already hospitalized 5 times by 3 months of age? Is this true? If you don't tell us the whole story we CAN NOT help you.
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    Really scared...

    I understand where you are coming from, trust me I do. However what you just said is much better than sarcasm. That was my gripe. I am not going to edit anything you just wrote because there is no...
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    Really scared...

    @kitomd21 Your negative sarcasm will not be tolerated. I would prefer not seeing it again. This IS a warning. You are bashing someone who, 1. Admits they have a problem. 2. Is asking for help. Which...
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