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Type: Posts; User: Twistofchaos

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    Doctors do tend to want to overdo it a bit...

    Doctors do tend to want to overdo it a bit ofcourse. They want us to hit a certain BMI and we do want a nice reserve but most CF'ers severely lack musclemass and making up for the weight in fat is...
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    Depending on where you are with your CF that's...

    Depending on where you are with your CF that's not actually true.
    <50% fev1 pretty much all you want to be focussing on is strength training ironically also to improve aerobic performance when...
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    The best decision you will make in your life! ...

    The best decision you will make in your life!

    Not just improve lung function but so much more. Much more oxygen efficient able body, healthier weight and appearance, self confidence, knowledge...
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    105% give or take, can't quite remember as it's...

    105% give or take, can't quite remember as it's been atleast 20 years ago but the % of predicted number is only very roughly being corrected to height, weight, male or female, age etc. And is going...
  5. Look into basic starting strength programs like...

    Look into basic starting strength programs like Rippetoe's. You want to train like a strength athlete and focus primarily on the squat, deadlift and bench to build a strong base.

    You can do that...
  6. Thread: How to

    by Twistofchaos
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    You can't get hypertonic saline where you live?...

    You can't get hypertonic saline where you live? You have to pay for it? Try to get your hands on "real" hypertonic saline though as it's safer, the amount of salt more constant and making it yourself...
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    #DjFunkyFife Just a thought but that could just...

    #DjFunkyFife Just a thought but that could just be the result of summer/humidity. Here it's terrible at the moment and am experiencing much of what you are describing and am nowhere near Orkambi....
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    Sorry! I got the terms confused but I ment...

    Sorry! I got the terms confused but I ment checked baggage ofcourse, not handluggage. Hope Rebjane hasn't left yet.

    We and our handluggage get a propper scanning in Europe as well so don't put...
  9. Could be your lungfunction will come back up a...

    Could be your lungfunction will come back up a long way as you clear out all that mucus.

    You don't mention your exercise but incase you don't there's just not any other way to do that than to...
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    Keep it in your carry on luggage. Here in Europe...

    Keep it in your carry on luggage. Here in Europe they barely even check that. I've never been asked about my big bags of medicine, strange equipment and dodgy supplement powders.

    But to be on the...
  11. How is his diet? Is he very pancrease...

    How is his diet? Is he very pancrease insufficient? First he could try to up his fat and vitamin D3 intake as those might boost testosterone and libido quite a bit. Men need decent levels of fat in...
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    Likely CF related. Our bodies tend to be achy...

    Likely CF related. Our bodies tend to be achy because of things like inflammation, coughing and fatigue from that, possible nutrition problems, mental issues (stress etc.) etc.

    Stretching is great...
  13. Nice bump. Yes in theory "real food" is better...

    Nice bump. Yes in theory "real food" is better but: I can't afford 2+ kg of meat and fish a day. Nor do I want to and while there's plenty things wrong with the dairy industry as well to get the bulk...
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    Stress of moving seems more likely to me, but...

    Stress of moving seems more likely to me, but everything's possible.

    You can check humidity with a cheapo analog humidity thing from the dollar store. Or a simple weatherstation with humidity for...
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    As mentioned above exercise the previous day...

    As mentioned above exercise the previous day where you try to clear out your lungs makes a huge difference the next morning.
    Mentally having a goal or something to work to helps. Write a book or...
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    That's a bit much. While one should take good...

    That's a bit much. While one should take good effort to cough as little as possible rather than a "I'll cough when, however loud and much I want because I've got a chronic condition" attitude, when...
  17. Thanks for sharing! Liked and following his...

    Thanks for sharing!
    Liked and following his channel.

    He's in great shape and it's great to see more and more bodybuilding CF'ers.
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    Dairy is not really bad unless you're lactose...

    Dairy is not really bad unless you're lactose intollerant. Many think they are but few are. If they're caucasian anyway. It's a pretty good source of calories, fats and all of that.
    Whole milk and...
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    I lost you? But you're right there. *waves* I do...

    I lost you? But you're right there. *waves*
    I do not assume my pancreas itself improved. Days where I can't stick to my regular diet much of my old problems re-emerge. But my pancreas still produces...
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    Fat itself is not unhealthy. Neither are carbs....

    Fat itself is not unhealthy. Neither are carbs.
    It's just that a lot of easy products and especially junk food contain the most unhealthy forms of each along with a bunch of stuff you really don't...
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    Battling CF kyphosis

    What are you experiences in improving structural CF related kyphosis?
    Have you been able to regain mobility in your thoracic spine?

    After a long period of malnutrition and sickness in my teens,...
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    Oh I absolutely hate summers, don't get me...

    Oh I absolutely hate summers, don't get me started.
    All the salt you lose you have to take in extra through diet, no way around it.

    Personally I like soup. It's a great way to take in a LOT of...
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    Pretty normal I suppose to feel aches, pains and...

    Pretty normal I suppose to feel aches, pains and tired when in rest but not as much when active, got the blood and oxygen pumping and mind likely on something else.

    But it does sound a lot like...
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    This part of that humor? Not sure. Poor guys....

    This part of that humor? Not sure.

    Poor guys. Ofcourse they have not a million better healthier less annoying disgusting offensive ways available to deal with their nervous intensity.

    I'm...
  25. Where are your saturations at? If you only...

    Where are your saturations at? If you only recently switched to O2 use during the day you can probably get away with doing rides without O2. You'll be excited and breathing fast so your sats will...
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