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Type: Posts; User: AnnieT

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    It didn't seem to do much. I'm sorry I haven't...

    It didn't seem to do much. I'm sorry I haven't been on for awhile and just saw this now.
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    I haven't been on in awhile, thank you for...

    I haven't been on in awhile, thank you for posting this, I will check it out :)
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    You can't get rid of pa..

    You can't get rid of pa..
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    I had this HORRIBLE migraine last summer due to...

    I had this HORRIBLE migraine last summer due to Psuedomonas. I know this thread is old, but so happy I found it and I'm not the only one who suffered with this.
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    My brother doesn't have CF but he has lung issues...

    My brother doesn't have CF but he has lung issues like mine, bronch. and possibly NOW, Primary Cilia Dyskensia. For him, it has reduced his congestion (sinuses, chronic cough) he is also dairy free....
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    Oh, I just saw this. It has helped HIM it does...

    Oh, I just saw this. It has helped HIM it does not mean it will help everyone.
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    Manuka Honey treatment for Psuedomonas

    I am desperate for something to treat my heavy psuedomonas infection. Cipro, none of the conventional antibiotics work anymore because it's grown resistance against it so I'm constantly getting...
  8. I tend to be sociable, I like meeting new people...

    I tend to be sociable, I like meeting new people but with coughing and hacking on people constantly it can be a deterrent on my socializing. I know I spelled that word wrong :)
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    I am currently in review as well! I sent in my...

    I am currently in review as well! I sent in my medical records from a previous hospital stay-and anything related to my case.
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    My mucus is yellow, dark green, pretty much...

    My mucus is yellow, dark green, pretty much disgusting. Last summer, I had *terrible* headaches and it was blue green snot coming out of my nose-lovely psuedomonas. I think it basis on the type of...
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    I'm a stay at home mom! My son is in...

    I'm a stay at home mom! My son is in kindergarten. I completely understand about wanting to go to college and getting a degree, but worry about your little one in the hospital. I can relate!
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    That's interesting with the benadryl and hearing...

    That's interesting with the benadryl and hearing loss.
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    I got biopsied for Primary Cilia Dyskensia this...

    I got biopsied for Primary Cilia Dyskensia this morning (twice) it's painful, but anyway that I know can cause hearing loss. I failed my hearing test 2 months ago. I'm not sure of certain medications...
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    This used to happen to me alot with hemoptysis...

    This used to happen to me alot with hemoptysis and my periods then it stopped but I used to think there was a connection as well.
  15. What does it feel like to go a day or two without albuterol?

    If I was in great health-I wouldnt need albuterol. I'm confused by your question, lol.
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    Have you ever received PT in a hospital?

    I received it once in 2001 during a hospital stay. Now everytime I'm admitted I have the vest-love that thing!
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    What do you Call this type of test?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jshet</b></i> Hi Annie, my mother n law has copd. They were able to get her a pulse ox that she wore overnight when sleeping for one...
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    What do you Call this type of test?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>longtimer</b></i> It would be a sleep study. Some sleep labs will do an ambulatory oximeter study to measure your oxygen at home while...
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    What do you Call this type of test?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Call the Doctor who ordered it. He/She will give you all the info that you need. Bill</end quote>

    I did and she is on...
  20. Thread: New Forums

    by AnnieT
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    New Forums

    Fun! Thanks to everyone's hard work!
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    Extremely scary PICC insertion

    Terrifying, I only had a picc line inserted once, but it is a major anxiety feeling for sure. I hope the drs. can give you something to relieve this.
  22. Thread: The Vest

    by AnnieT
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    The Vest

    I love my Vest, I don't know what model it is and jealous of the pink vests out now!! lol.
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    What do you Call this type of test?

    My dr. believes my O2 is dropping at night-so he is ordering a pulse ox study. But, the office wants me to 'research' where to go. I've called local hospitals and durable medical equipment suppliers...
  24. Im starting pulmonary rehab!! Very stoked!..Time to raise my numbers!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>carly23</b></i> Im starting pulmonary rehab to raise my fev and oxygen numbers to where i will not need oxygen i understand this will not...
  25. Im starting pulmonary rehab!! Very stoked!..Time to raise my numbers!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rhonda21</b></i> MY daughter is 26 now and pfts usually in her 50's. When should she consider pulmonary/cardiac therapy?</end quote>
    ...
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