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  1. Replies
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    2,332

    CFTR2 Site is now active

    Havoc-
    Agreed. It didn't tell me anything I didn't already know. The pulmonary stats were also very vague.
  2. Replies
    25
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    2,332

    CFTR2 Site is now active

    Havoc-
    Agreed. It didn't tell me anything I didn't already know. The pulmonary stats were also very vague.
  3. Thread: Clarification

    by Anomie
    Replies
    38
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    5,252

    Clarification

    @rainsmom, I already sent livingstrong a PM on your behalf. Also, you could try starting a new thread with her name in the subject line instead of just randomly asking for her in other threads. Maybe...
  4. Thread: Clarification

    by Anomie
    Replies
    38
    Views
    5,252

    Clarification

    @rainsmom, I already sent livingstrong a PM on your behalf. Also, you could try starting a new thread with her name in the subject line instead of just randomly asking for her in other threads. Maybe...
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    2,352

    CFTR2 Site is now active

    File not found.
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    11
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    2,352

    CFTR2 Site is now active

    File not found.
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    What song do you relate your CF fight to

    Queen- Another one bites the dust

    "How do you think I'm going to get along without you when you're gone"
  8. Thread: WWYD

    by Anomie
    Replies
    41
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    3,505

    WWYD

    Can the teacher wear a mask during these private sessions. Its sounds like your daughter really loves this teacher and they could probably be a real inspiration to her that people with CF can...
  9. Thread: WWYD

    by Anomie
    Replies
    41
    Views
    3,505

    WWYD

    Can the teacher wear a mask during these private sessions. Its sounds like your daughter really loves this teacher and they could probably be a real inspiration to her that people with CF can...
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    Pulmozyme with Pari LC?

    I don't think so.
  11. Replies
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    2,776

    Pulmozyme with Pari LC?

    I don't think so.
  12. Replies
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    5,615

    Socially Acceptable Ways to Pass Gas!

    That's awesome! Your little guy sounds like a laugh a minute. You should be very proud!! And by the way, I don't think there is a socially acceptable way for a 7yo to pass gas so when nature calls...
  13. Replies
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    5,615

    Socially Acceptable Ways to Pass Gas!

    That's awesome! Your little guy sounds like a laugh a minute. You should be very proud!! And by the way, I don't think there is a socially acceptable way for a 7yo to pass gas so when nature calls...
  14. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    Its measured with the Vertex drugs because they were designed to reduce sweat chloride plain and simple. Having a high sweat chloride level is not an indication of severity with the disease. Its just...
  15. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    Its measured with the Vertex drugs because they were designed to reduce sweat chloride plain and simple. Having a high sweat chloride level is not an indication of severity with the disease. Its just...
  16. Pseudomonas Eradication in Newly Diagnosed Patient

    Your doctor's right. You're daughter has probably had the pseudo for a while and therefore will not easily be able to get rid of it. If you give her too many antibiotics the pseudo may become...
  17. Pseudomonas Eradication in Newly Diagnosed Patient

    Your doctor's right. You're daughter has probably had the pseudo for a while and therefore will not easily be able to get rid of it. If you give her too many antibiotics the pseudo may become...
  18. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    I looked at a few recent articles online and it appears that a direct correlation between genotype and phenotype has not been scientifically established and that variabilty is the highest when it...
  19. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    I looked at a few recent articles online and it appears that a direct correlation between genotype and phenotype has not been scientifically established and that variabilty is the highest when it...
  20. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    You know any double deltas that were diagnosed in their 50's because I sure don't? Modifier genes do change specific outcomes for people with the same genotype but I do believe that some aspect of...
  21. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    You know any double deltas that were diagnosed in their 50's because I sure don't? Modifier genes do change specific outcomes for people with the same genotype but I do believe that some aspect of...
  22. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    I meant kids that aren't being treated with mucus thinning agents which I'm betting you are. The OP made it sound like her child wasn't being treated for CF lung disease in her original post. As far...
  23. Thread: DF508 question

    by Anomie
    Replies
    41
    Views
    3,693

    DF508 question

    I meant kids that aren't being treated with mucus thinning agents which I'm betting you are. The OP made it sound like her child wasn't being treated for CF lung disease in her original post. As far...
  24. Thread: Second Child??

    by Anomie
    Replies
    105
    Views
    6,013

    Second Child??

    Ratatosk-
    Don't you think you should report this mother to CPS. There was an article recently in the news where a mother was convicted of 2nd degree negligent homicide for the death of her three...
  25. Thread: Second Child??

    by Anomie
    Replies
    105
    Views
    6,013

    Second Child??

    Ratatosk-
    Don't you think you should report this mother to CPS. There was an article recently in the news where a mother was convicted of 2nd degree negligent homicide for the death of her three...
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