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Type: Posts; User: Liza

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    There's a .gov website that will tell you which...

    There's a .gov website that will tell you which pharmacies and what they have. Just do a search for the quadravalent flu shot and it should come up within the first two or three suggestions. Then of...
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    I have taken them to our local pack and post...

    I have taken them to our local pack and post after calling them asking them if they could use them. Maybe, just maybe they'll remember that come Christmas shipping time and give me a little discount,...
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    I'm a little late on chiming in here but thought...

    I'm a little late on chiming in here but thought I'd add anyway. It's a bit difficult to find a lightweight portable that is a continuous flow going higher than 2 or 3. I believe the Sequal does do...
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    We bring sheets, pillow & blanket among many of...

    We bring sheets, pillow & blanket among many of the things already listed. The jersey type sheets they use in the hospital make my daughter all sweaty and since she's in there for a while, she likes...
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    Aboveallislove, That's exactly what I thought!...

    Aboveallislove, That's exactly what I thought! Well, not the 20% but that she was responsible for the remainder of the bill after the allowable amount. Which is why she turned down the actual...
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    Hth, I'm not the original poster but I've a...

    Hth, I'm not the original poster but I've a question for you about switching to standard. You say there's a $200 deductable, is that it? No out of pocket expenses past the $200? They once suggested...
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    Hi, I don't have any advice on how you go about...

    Hi, I don't have any advice on how you go about getting it approved but my daughters CF dietitian care was always covered as part of their CF clinic visit care. Usually, I believe, your CF visit is a...
  8. Thread: Informal Survey

    by Liza
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    Both grandfathers of my girls served in Vietnam.

    Both grandfathers of my girls served in Vietnam.
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    Hi Caitlin, I'm a mom of a transplant recipient....

    Hi Caitlin, I'm a mom of a transplant recipient. My daughter wasn't allowed to return to college until 6 months post. We went to Australia at 17 months post tx. You would want to get your teams...
  10. How long ago did you have your transplant? My...

    How long ago did you have your transplant? My daughter's barrel chestedness (if that's even a word, lol) slowly reduced over her first year post tx. It's due to air trapping, the hyperinflation that...
  11. I am so sorry for the loss of your son. For me,...

    I am so sorry for the loss of your son. For me, there is no greater grief than to lose a child, no matter their age, they are still your child. My heart is heavy for you.
  12. Thank you so much, John! How is the response time...

    Thank you so much, John! How is the response time when you call because you're not feeling well?
  13. Hey Autumn! No, I sure don't know Laura. That's...

    Hey Autumn! No, I sure don't know Laura. That's would be great, if you could put me in contact with her! I've heard from another person that they weren't too thrilled with the Tucson clinic. With...
  14. Anyone out there that goes to the CF clinic in Phoenix?

    I'm looking for anyone who goes to clinic in Phoenix. How do you like it there? The hospital during admit? The docs, the care, aggressiveness etc.

    Here's why all the questions. My daughter and...
  15. Thank you so much! I'll be sending you an email.

    Thank you so much! I'll be sending you an email.
  16. Wondering about CF care in Denver & TX program

    I'm looking for anyone who goes to clinic at Jewish National in Denver, Colorado. How do you like it there? The hospital during admit? The docs, the care, aggressiveness etc. Do you live in CO travel...
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    Hi Donin, anything specific you're wondering...

    Hi Donin, anything specific you're wondering about? My oldest daughter and I temporarily relocated for her to be listed for tx. She was in college at the time, we had a house in Texas and our younger...
  18. Hi, I just wanted to say that I hadn't heard of...

    Hi, I just wanted to say that I hadn't heard of anyone that has gotten pregnant post tx. but also add, to kemcloney3, that her doctor probably more meant that it was extremely ill advised to get...
  19. Thank you, Usual Suspect, for the link. I either...

    Thank you, Usual Suspect, for the link. I either missed that it was actually put in your mouth or it wasn't mentioned in the initial post.

    This is quite interesting though. My first thoughts came...
  20. Sounds like the Frequencer to me. How is this...

    Sounds like the Frequencer to me. How is this different or is it not?
  21. Isa continues to amaze me!

    Isa continues to amaze me!
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    I'm sorry, but this just makes me angry. I have...

    I'm sorry, but this just makes me angry. I have no problem with you asking questions, doing a paper etc. But honestly, a little bit of research before asking for help. What has got my panties in a...
  23. Caitlin, in case you didn't' know, "dry run" in...

    Caitlin, in case you didn't' know, "dry run" in transplant (tx) terms, means that the tx was not a go for what ever reason. I think what cftransplant was getting at was the cost of a charter or air...
  24. Thank you Caitlin and Aboveallislove.

    Thank you Caitlin and Aboveallislove.
  25. Hi Caitlin, We set up a private charter jet as a...

    Hi Caitlin, We set up a private charter jet as a back up for our daughter when she was double listed. Although our insurance was going to cover an air ambulance from her town, we needed to have one...
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