Search:

Type: Posts; User: Printer

Page 1 of 20 1 2 3 4

Search: Search took 0.05 seconds.

  1. Replies
    8
    Views
    3,162

    Go to a CF CLINIC!!!!

    Go to a CF CLINIC!!!!
  2. Replies
    3
    Views
    4,735

    If and when you have a problem, contact legal at...

    If and when you have a problem, contact legal at cff.org
  3. Replies
    4
    Views
    1,143

    Yes, I use Advantage. I have a plan (expensive)...

    Yes, I use Advantage. I have a plan (expensive) that pays all of my co-pays for Medicare A & B. I have been averaging 3 hospitalizations per year and the Advantage plan pays everything that...
  4. Thread: Hello

    by Printer
    Replies
    2
    Views
    708

    You will adjust to CF and the new meds. I was dx...

    You will adjust to CF and the new meds. I was dx at age 47, in January I will be 79.
  5. Poll: You are showing more than enough symptoms to...

    You are showing more than enough symptoms to justify further screening. You need to be seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CYSTIC FIBROSIS SPECIALIST. I was 47 when I was diagnosed. ...
  6. Replies
    4
    Views
    1,143

    During the Open Enrollment period, call the...

    During the Open Enrollment period, call the company that you have selected and sign up. They will do the rest.
  7. Replies
    4
    Views
    1,143

    During the open enrollment period, call the...

    During the open enrollment period, call the company that you have selected. Sign up. They will do the rest.
  8. Replies
    5
    Views
    1,585

    You are not alone, there are many of us older CF...

    You are not alone, there are many of us older CF patients. There is a woman in Calif who was dx in her late 80s and is now 94. I was dx at age 47. You need to be seen at an APPROVED CYSTIC...
  9. Replies
    7
    Views
    1,850

    It certainly seems like something that needs to...

    It certainly seems like something that needs to be checked out. Her Doctor suspects CF but what is he/her doing to find a proper Dx. Your daughter needs to be seen at an APPROVED CYSTIC FIBROSIS...
  10. Replies
    4
    Views
    1,998

    I would have him retested but only at an APPROVED...

    I would have him retested but only at an APPROVED CF CLINIC by a CF SPECIALIST.
  11. Replies
    6
    Views
    2,326

    God bless you Ken. You are a trailblazer

    God bless you Ken. You are a trailblazer
  12. Replies
    6
    Views
    2,326

    Ken: I'm so very glad that you are doing well....

    Ken:

    I'm so very glad that you are doing well.

    Bill
  13. Replies
    1
    Views
    567

    Follow this link for APPROVED CF CLINICS. ...

    Follow this link for APPROVED CF CLINICS. www.cff.org Good luck
  14. Replies
    8
    Views
    2,719

    All CF patients produce and swallow mucus. The...

    All CF patients produce and swallow mucus. The mucus mixes with food in the digestive process. Mucus is a sticky substance and will, with digested (stool) food, stick to the walls of the colon. ...
  15. Sorry Call your CF Doctor

    Sorry Call your CF Doctor
  16. Call your CD Doctor

    Call your CD Doctor
  17. Replies
    4
    Views
    7,513

    NO CF son; I was not "late onset". I had...

    NO CF son; I was not "late onset". I had symptoms (that I am aware of) at age 3. I had symptoms right up to my dx, including 2 surgeries that would be CF RELATED NOW.

    We are born with CYSTIC...
  18. Replies
    9
    Views
    7,510

    Courtney & G-Star: I have Delta F508 and...

    Courtney & G-Star:

    I have Delta F508 and V562I. V562I is a mild and rare mutation, only found in seven families in Northern Ireland. January 19 is my birthday and I will be 78. I have 2 college...
  19. Replies
    11
    Views
    2,998

    Stella: I was diagnosed at age 47 so being dx at...

    Stella: I was diagnosed at age 47 so being dx at their ages and without symptoms is really a good thing.
  20. Replies
    3
    Views
    1,559

    It sounds to me that you need a FULL CYSYIC...

    It sounds to me that you need a FULL CYSYIC FIBROSIS SEQUENCING. This is a simple blood draw that will identify every known CF mutation. Have your Doctor refer you to an APPROVED CYSTIC FIBROSIC...
  21. I have 3 siblings, none have CF. I do however...

    I have 3 siblings, none have CF. I do however have had 3 cousins who have passes from CF and one living who has had a transplant.

    It should be important to you to know if you have CF or are even...
  22. Replies
    7
    Views
    2,570

    Livvy: Next week I will be 78. I have 2...

    Livvy:

    Next week I will be 78. I have 2 college degrees and I have been married for 55 years. Yesterday I chatted with a guy 57 who was dx at age 41. His mother tested positive at that thim...
  23. Replies
    4
    Views
    7,513

    I was diagnosed at age 47, 30 years ago. You are...

    I was diagnosed at age 47, 30 years ago. You are exactly where I was then. There are now almost 2000 known mutations and we know that you have tested positive for one of these. Cystic Fibrosis is...
  24. First, If your twins are not being seen at an...

    First, If your twins are not being seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CYSTIC FIBROSIS SPECIALIST, you need to start there. Some, only a few, variants mimic CF. Tell me the name of the...
  25. If both you and your husband are carriers, there...

    If both you and your husband are carriers, there is only a 25% chance that a child that you produce will have CF. Yes this is normal. For a person to have CF, he/she would need to have 2 mutations,...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4