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Type: Posts; User: Patti Rowland

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  1. Thread: 3905inst

    by Patti Rowland
    Replies
    8
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    3,048

    Hello! Just saw this. My daughter also has this...

    Hello! Just saw this. My daughter also has this same gene which is very common in the Swiss population. Her other gene is also delta508. She was diagnosed at 10 years old. She really did not exhibit...
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    My daughter used a "wabi baby" (used for baby...

    My daughter used a "wabi baby" (used for baby bottles) and it worked perfect. You had to buy sterile water which was a pain but otherwise, its quiet, ez to use and you can keep the items stored in...
  3. Vertex received millions of dollars from the CF...

    Vertex received millions of dollars from the CF Foundation for years to fund their research. Now, they charge the CF community outrageous prices for the drug. :(
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    my daughter is taking NAC Sustain by Jarrow 600...

    my daughter is taking NAC Sustain by Jarrow 600 mg twice a day. Though her lung function stayed consistent, no better no worse, the first blood work she had after starting it showed a dramatic...
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    Isn't that the truth? At least we are in a time...

    Isn't that the truth? At least we are in a time when their is more hope than ever before. Stay strong.
    >>>HUG<<<<from one worried parent to another.
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    I have also worried about this. I was assured...

    I have also worried about this. I was assured that there is a filter that blocks out 99.9% ......of course every time my daughter is using it I keep thinking about that
    .01%. I fear the clinic...
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    It is my understanding that there is definitely a...

    It is my understanding that there is definitely a loop hole that would allow states to reinstate the lifetime caps. I found this by googling and read different sources.
    Obamacare was not perfect...
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    yes, Scott Gottlieb is a venture capitalist with...

    yes, Scott Gottlieb is a venture capitalist with many financial ties to the pharmaceutical companies and he will do whatever it takes to push these drugs through..,
  9. Yes, i fear we are entering very uncertain times...

    Yes, i fear we are entering very uncertain times with the corporate world with them already talking about lifting any safeguards and regulations placed on them in the last 8 years. Here we go...
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    4,534

    How do you know it will include protections for...

    How do you know it will include protections for those with a preexisting condition? Who will fight it, which house of Congress? I sure hope you are right but this is a huge win for the insurance...
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