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  1. Replies
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    I think it has more to do with insurance and...

    I think it has more to do with insurance and lawsuits than anything else.

    Not saying it is good or bad, it's just the way it is.

    If a medical facility openly invites multiple C.F. people in a...
  2. My first hospital stay was at around 4-7 (sinus...

    My first hospital stay was at around 4-7 (sinus issues), but the first one I really remember was at 16. It was a big scary, I remember crying a bit, but it just turned out to be something I had to...
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    I don't have any personal experience but quite a...

    I don't have any personal experience but quite a few friends of mine have. They do check! They are pretty strict about enforcing the $ cap. Usually you get a notice saying youre over your limit and...
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    To me it boils down to examining quality of life,...

    To me it boils down to examining quality of life, and through that evaluation age range comes into play as well as everything that is suppose to happen within that age range. Speaking only for myself...
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    Yeah inflamation sucks. I'm starting to get that...

    Yeah inflamation sucks. I'm starting to get that a lot now too.

    Swimming is the only thing so far that I found somewhat helps with that. The mist combined with the air and exercise helps get the...
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    Reserved (can we do that lol- I might write...

    Reserved (can we do that lol- I might write something later)

    I also wanted to say that all of you, but especially beautifulsoul, inspire me. For me right now, I prefer anonymity but it is nice to...
  7. Thread: Lung Function

    by static
    Replies
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    1,285

    Lung function is stardard measurement for...

    Lung function is stardard measurement for everyone, c.f. or not.

    As a teen I was always in the high 90s and for most people with c.f. that tends to decline with age.

    Ways to halt the...
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    Fortunately I am well taken care of, but I know...

    Fortunately I am well taken care of, but I know quite a few people with situations similar to yours. I also live in California.

    First where about in cali are you located? I know in the Sacramento...
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    I'm not as sold on the CF as printer as it sounds...

    I'm not as sold on the CF as printer as it sounds like a multitude of issues but I agree you should get tested to rule it out.

    Other than CF specific tests standard tests I would ask for are a...
  10. The way that I handled it was just not to tell...

    The way that I handled it was just not to tell anyone, ever. Of course then it can come across as I'm lazy or disrespectful depending on the circumstances.

    I am still very careful who I tell but...
  11. Thread: Working with CF

    by static
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    2,333

    First off, congratulations on finishing your...

    First off, congratulations on finishing your degree! You worked hard for it so you should be extremely proud!

    I work in the health care field as well, part time. At first I was very secretive...
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    Sorry for that, I should have changed the...

    Sorry for that, I should have changed the wording/ tone to be more respectful towards your concerns in my response. I hope I didn't deter you from posting any questions/concerns in the future.

    ...
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    Honestly I think you are worried for nothing. As...

    Honestly I think you are worried for nothing. As you stated it has a relatively low impact on your life (at least lung function wise), so why treat something that isn't that big of a deal?

    There...
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    With CF as you know everything is a trade-off....

    With CF as you know everything is a trade-off. Same goes with mental health. Every medication has a potentially undesirable effect, the trick is to find the one that works best for you. I'm sorry you...
  15. Keep fighting and like Aboveall said check out...

    Keep fighting and like Aboveall said check out the possibilities of new drugs. I think most doctors are conventional on how they approach the disease so the more you can advocate for yourself the...
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    No advantages. If exposed long enough it can...

    No advantages.

    If exposed long enough it can narrow airways and make it harder to cough up stuff. All a cough is is air getting underneath the foreign substance and trying to get it out.
    ...
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    Glad it got resolved. Every doctor has a...

    Glad it got resolved.

    Every doctor has a different style. I am very lucky to have a doctor who is honest and open with me, as well as take the time to educate me on the pros and cons to every...
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    Honestly I'd wait. I went through the phase...

    Honestly I'd wait.

    I went through the phase when all my friends thought it was cool to get tattoos. After your younger years that fad passes, most don't get another one again.

    On the other...
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    That is very moving. I'd be curios to find...

    That is very moving.

    I'd be curios to find out the patients advocates reasoning for voting no. I'm under the belief that everything comes with risks, but I agree people who want it should have a...
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    No they are not lying I don't think. For concrete...

    No they are not lying I don't think. For concrete answers you can call medical directly or talk to his social worker at the CF clinic (might be faster to call directly).

    You can Work with SS but...
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    Wishing you good health!

    Wishing you good health!
  22. Replies
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    sounds like progression to me. I'd be more...

    sounds like progression to me.

    I'd be more concerned with lung scarring though. That is the true test of progression , mucus can be cleared out.

    You mentioned her doing lots of vest...
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    I don't know, I understand arguments from both...

    I don't know, I understand arguments from both sides.

    He probably didn't think you had a lung condition, just maybe sick. If you're sick the general consensus would be to stay home and get better...
  24. Thread: Please help

    by static
    Replies
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    3,349

    Cf is normally detected using a sweat test...

    Cf is normally detected using a sweat test (collects the amount of salt in your sweat).

    1.) Doctors can test for those organisms by doing a sputum culture( the greener, the better. Try to cough...
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    Now we are getting somewhere. Life experiences...

    Now we are getting somewhere.

    Life experiences are interesting that way, they can drastically change your perception on a multitude of issues ranging from political views to social issues.

    I'm...
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