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I am 9 months post double lung transplant.
Recently diagnosed with severe obstructive sleep apnea. Did not have prior to transplant. Any one else have this issue?

I am 9 months post double lung transplant.
Recently diagnosed with severe obstructive sleep apnea. Did not have prior to transplant. Any one else have this issue?

I worked in Nuclear Medicine for 35 yrs.
Went to Duke.

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is administered in how much saline or distilled water....

Does anyone do nasal administration of antibiotics? If so would you mind sharing what antibiotic or antibiotics and much, mg etc. as well how it is administered in how much saline or distilled water....

UT Southwestern Dallas Tx.
Great place for having Lung Transplant!

Thanks Bill! All is good 5 wks post. Fev1 is 95% walking 2 miles Stats 98-99 Hr. 87. Now to see if this old body can keep up with these new lungs. Amazing to be able to breath with ease! No Neb RX!...

I recently had a double lung transplant. My fev1 prior to surg. was 19, 3 wks post surg. it is 72.
Doing great otherwise. Just a little sore. I was placed on the transplant list Dec. 27 2017. Had my...

My sister who is now 17 yrs. out had hers done when she was 50. Now 67 and doing great!
How far out are you from transplant?

My sister with CF had a double lung transplant at 50. yrs. she is now 17 yrs. out and doing great.

My sister with CF had a double lung transplant at 50. yrs. she is now 17 yrs. out and doing great.

Go for your grad school if so desire. I will be 70 next month. After workeing in Nuclear Medicine at the same Mdical ctr. for 35 yrs. I retired to take better care of my CF on encouraging words from...

I stopped when I as 57 and my FEV 1 was 28%, had worked 35 yrs. in a hospital in Nuclear Medicine days nights wkends. and on call 24hrs. at a time. My Dr. and my wife both strongly wanted me to...

Agree reinfecting ones self would be a concern of mine.
I sterilize all of my neb equipment between neb. Rx. Using disposal mask is the way to go for me. Luckily I have not had a Iv antibiotic in...

Washing hands as you already do and use hand sanitizer if you shake hands with someone .
Use paper towel to open and close public bathroom doors.
One thing I do is sterilize my nebulizer after...

Good morning ladies. Working out takes time and is not easy when you have a low Fev1. This will help us post pone as well as get through the transplant and speed up recovery time they say at UT...

Hello Julie61554
Your and my status sound some what alike. My FeV1 is between 23-25, resting sats 97-98. With 6 min walk sats drops to 96 at 3 min. I use O2 at night none during the day. I have...

Great Ratatoska, sounds like Orkambi is helping you son. Praying this continues.
I have noticed a increase in clear drainage from my nose. The mucous coming out of my lungs is definitely thinner? I...

I decided to stop my Neb. Colistin because of the significant bronchospasms. I noticed a improvement in one day, now at day 2 bronchospasm completely gone. So I will for the time being just Neb....

If you look straight down on the top you can see the raised edge to flip up. I have not had any problems. Good luck.

It has a raised edge about 3/8 inch. long, run your fingers around the top outside edge. There is writeing saying "flip up" on top. Where it is written flip up, that is where you flip up and peel...

For me it is easier. You have to flip the correct side of the blue cap.

I am trying something a little different. I am doing a albuterol Neb RX before and after the Orkambi dosing and Colistin Neb. It seems to help today because I was able to go to the gym for 1&1/2 hrs....

DJ, good for you! As you know exercise is very important for us Cfers. I go to the gym 3 times a wk. doing 11/2 hr. Or more Work out each time. I am not able to do treadmill any more because of...

I have taking Neb Colistin for several yrs. with out any issues until yesterday. I started Orkambi 23 days ago and have been on Cayston until yesterday and switched to Colistin. Had increasing sob...