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  1. Replies
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    I was diagnosed as mild CF - 12 years ago in...

    I was diagnosed as mild CF - 12 years ago in Toronto, Ontario. I'm now 49 years old. Diagnosed when I was pregnant. Are you going to St. Mike's or Sick Kids for your appointments? I went to Sick...
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    Hi Rachelh79, I'm a 49 year old female with the...

    Hi Rachelh79,
    I'm a 49 year old female with the same gene combination as your daughter. I was diagnosed at 37. Do you live in the US or Canada? I was diagnosed when I was pregnant. Growing up...
  3. Female Age:48 Weight:155 lbs Height:5' 10 1/2"...

    Female
    Age:48
    Weight:155 lbs
    Height:5' 10 1/2"


    Lori
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    Hi Pootersmom14, I've been on the forum for a...

    Hi Pootersmom14, I've been on the forum for a couple of years myself. From Canada - diagnosed at age 37 when I was pregnant. I'll be 49 in February. Like Printer says there are lots of us...
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    Here's a link on CF pregnancies and...

    Here's a link on CF pregnancies and complications.

    http://ca.indeed.com/viewjob?jk=40a4abf053b09c35&q=Employment+Office&l=Mississauga%2C+ON&tk=182upqpgf0nii5o6&from=web
    Ms. Rowan, why is it so...
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    I would have to agree with Anien2. I'm a CF Mom...

    I would have to agree with Anien2. I'm a CF Mom of 2. I delivered both in the hospital. I had complications with my first and the Dr. had a difficult time controlling my bleeding. They were able...
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    I was diagnosed at 37. I'm now 48. My gene...

    I was diagnosed at 37. I'm now 48. My gene combination is D508 and R711H.. I had lung issues all my life. Went through genetic counselling when I was 37 and pregnant. I have 2 healthily non CF...
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    Gunelle - If you want any further information...

    Gunelle - If you want any further information feel free to send me a private message.
    I can answer any questions on this thread as well.

    Welshwitch - I certainly have time to chat further. ...
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    I'm a 48 yr old mother of 2 children - 9 & 6...

    I'm a 48 yr old mother of 2 children - 9 & 6 years old. The lack of sleep certainly is something that I suffered from when they were younger and even now when they have a rough night. More germs,...
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    I'm a 48 YR female - diagnosed at 37. I have...

    I'm a 48 YR female - diagnosed at 37. I have very low blood pressure and have for as long as I can remember. For an adult normal is 120 over 80. I'm 90 over 60 or lower on a regular basis. It's...
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    Hi Fel, I'm a 48 year old woman, diagnosed at...

    Hi Fel, I'm a 48 year old woman, diagnosed at 37. My gene combo is D508 & R711H. My lung function is 92%. I started PEP therapy this year and have been on and off antibiotics for the last year. ...
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    I have the same gene combination as you. I am 47...

    I have the same gene combination as you. I am 47 and was diagnosed at 37. I had always had lung issues growing up. My lung function was 107% 10 years ago and now it's 92%. I'm now starting daily...
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    Welcome home Zach! What wonderful news. You...

    Welcome home Zach! What wonderful news. You must be so happy! How are you feeling?? Looking forward to catching up sometime on chat!
    Take care,
    Kittenface
  14. Fabulous Blog Jessica. Wishing you all the best....

    Fabulous Blog Jessica.
    Wishing you all the best. Playing "Keep Breathing" as I'm typing this message :)

    Kittenface
  15. I confirmed with my CF doctor and the wrinkling...

    I confirmed with my CF doctor and the wrinkling of hands is linked to CF and CF carriers. Here's a link I found: http://www.ncbi.nlm.nih.gov/pubmed/20560957
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    Hello Everyone, Well I said I would book the...

    Hello Everyone,
    Well I said I would book the appointment and I did. I met with the CF clinic today and had all of my tests. My blood work was good - everything was normal including my Gluc....
  17. I forgot about your question on being lethargic?...

    I forgot about your question on being lethargic? I've been feeling very lethargic these last few months. It could be the lack of exercise on my part. It goes hand in hand. If you exercise you feel...
  18. I have CF - age 47 - D508 & R117, considered mild...

    I have CF - age 47 - D508 & R117, considered mild mutations. I have very sweaty hands, so sweaty that when I want to shake someone's hand I must first wipe them discretely on my suit. I'm in sales...
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    Nikole, I was dx at age 37 and I'm now 47. I...

    Nikole,
    I was dx at age 37 and I'm now 47. I knew it was in my family since my nephew passed away over 20 years ago with CF. I went for genetic testing as well as my husband. He's not a carrier...
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    I'm going to join tonight to chat for the first...

    I'm going to join tonight to chat for the first time


    Lori 47 dx age 37 - R117 & D508 - with 2 kids no CF
  21. Thread: CF and Work

    by kittenface
    Replies
    19
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    4,567

    CF and Work

    Radies
    I do have coverage through the government called OHIP however I also have benefits through the company I work for. It covers long term, short term disability a drug plan etc. but pay extra...
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    D508/R117 mutations

    Well first of all thank you for all of your responses. I appreciate your comments and advice. I haven't been able to really focus on my health since I'm in the situation of being in a sandwich era of...
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    Off Label Kalydeco Question

    Marcijo - You have the same gene combination that I do. I was diagnosed at 37 and I'm now 47.
    Have had lung infections, sinus infections etc and haven't had to take meds for my digestion at all....
  24. Thread: CF and Work

    by kittenface
    Replies
    19
    Views
    4,567

    CF and Work

    I was diagnosed later in life - 37. I'm now 47 and only my very close friends that I work with know (three in fact) that I have CF. I have a mild form - D508 and R117 gene combination. I have...
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    D508/R117 mutations

    Hi Jenny
    I haven't heard of this drug. I'll google it. What is it used for?
    Thank you for your message.
    Lori
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