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  1. Replies
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    Cool iphone app

    I saw a news story on the BBC about this app called "Be My Eyes" it connects blind people with sighted volunteers all over the world. I know there may not be a ton of blind people on here but I don't...
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    I guess I just don't understand. It seems like...

    I guess I just don't understand. It seems like common sense to me that we who suffer from cystic fibrosis should be very bothered by the fact that someone would have to go through the head of Health...
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    Obviously this girl's doctor's thought she was an...

    Obviously this girl's doctor's thought she was an acceptable candidate for adult lungs it's just her age that caused the issue and a technicality like that shouldn't decide if a person lives or dies....
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    Well, we are getting a good first glimpse of...

    Well, we are getting a good first glimpse of Obamacare. Kathleen Sebelius could waive the age rule for this girl but she has decided not to. The fact that one person has that much power over...
  5. Thread: Tobi

    by albino15
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    Tobi

    Maybe I'm just late to the party cause I can't believe this hasn't been posted yet!!! I nearly fail out of my chair. LOL
    ...
  6. I don't think enzymes are a perfect solution I...

    I don't think enzymes are a perfect solution I mean based on what people here have written, it's like they help some people better than they help others. I think I understand what you said but it...
  7. Degrassi didn't have a character with CF they...

    Degrassi didn't have a character with CF they just mentioned it. I think one of the characters new someone with a brother who had it or something like that. It was a year or so ago.
  8. I agree that it needs more awareness but lately...

    I agree that it needs more awareness but lately it has been popping up more, especially on TV shows. I can name a few TV shows within the past few years where it's gotten a mention or had a character...
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    Thanks for the info Bill. Much appreciated.

    Thanks for the info Bill. Much appreciated.
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    Has anyone heard anything about source cf. Have...

    Has anyone heard anything about source cf. Have they stopped making them or what?
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    don't forget the "amen"

    don't forget the "amen"
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    Oh yeah!! I'm still watching. The reason this...

    Oh yeah!! I'm still watching. The reason this show works and has attracted such a wide audience is because it's not about the dead, it's about the living.

    The title doesn't refer to the walkers.
  13. I don't know the technical differences between...

    I don't know the technical differences between 661 and 809 but they must be different somehow. Correct me if I'm wrong but didn't they do some early trials with 661 and it wasn't as good as they...
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    I was curious so I looked it up, it looks just...

    I was curious so I looked it up, it looks just like the eflow, even says "eflow technology" on it. The eflow has been available for years, I guess they just keep changing the name.
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    I don't know your full situation and everyone is...

    I don't know your full situation and everyone is so different but if your kid is having stomach issues everyday I'd talk to the doc about enzyme dosage. That right there seems to be the time sucker...
  16. It seems like there aren't many people posting...

    It seems like there aren't many people posting updates on their experiences with this drug. I hope its just because there aren't that many people on here who are taking it and not because it wasn't...
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    Cool, big difference between 508 and G551D.

    Cool, big difference between 508 and G551D.
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    Yep, I've managed to clog quite a few toilets in...

    Yep, I've managed to clog quite a few toilets in my day. LOL Glad to know it's not just me.
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    I had heard that a year or so ago, it was some...

    I had heard that a year or so ago, it was some study done in Ireland.

    http://www.rcsi.ie/index.jsp?n=110&p=100&a=2179
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    Man, I'd love to know about this too. I have...

    Man, I'd love to know about this too. I have wondered if there's anything that can be done to help during those times of absolute misery.
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    Yeah, they've started a new online store and for...

    Yeah, they've started a new online store and for now it says you have to call to order them.

    https://store.aptalispharma.com/home.php
  22. I was on Advair for about four years or so. When...

    I was on Advair for about four years or so. When I started going to an adult clinic the doc didn't want me to take it anymore, he just said he didn't want me on steroids or something like that (I...
  23. In my entire 13 years of school, I was never...

    In my entire 13 years of school, I was never allowed, BY ANY SCHOOL, to carry my own enzymes.

    One alternative to going to the nurse would be to have the teacher give them out at lunch time.
    ...
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    Just wanted to add that people with CF can become...

    Just wanted to add that people with CF can become dehydrated easier than people without CF so I wouldn't discount his episodes of dehydration.
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    I think you have the right to be frustrated but I...

    I think you have the right to be frustrated but I think you should try and consider that your friend has no idea what it’s like to be labeled with an illness and then have to rely on medication to...
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