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Type: Posts; User: Enzo2311

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    I was treated like a freak

    So regulations apparently say that I must wear a mask in the cf clinic and anyone who's in contact with me must wear a full gown, mask, and gloves. Like I have the worlds first zombie plague lol
    ...
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    Medical Marijuana

    I told my cf doctors I use it, and they seem... Disappointed.

    i don't smoke it. I vaporise it or I eat it through food.

    Whats your thoughts and opinions about it? After they found out they even...
  3. Explain how my PFTs went from 111% last month to 94% today

    I'm sad and confused. How does this happen?? Last time I got my PFT was from my general doctor using some fancy handheld one I got 111% , and now at my CF clinic with their bulky computer and special...
  4. Building muscle isn't any more difficult in...

    Building muscle isn't any more difficult in comparison to a normal person? i feel since i have cf its a lot harder for me to gain muscle than someone else who's normal without cf.
  5. Is it normal to cough up mucous while casually working out and doing treatments?

    Cause I've seen that a lot of CFers do that, but I don't. I don't cough up anything. why is that?


    My pft is 111% btw
  6. Which is easier: Gaining Muscle or Losing fat?

    which is easier for those who have CF?
  7. Is muscle building different for me because i have cf?

    So I really feel that its different for me... some how. Its harder for me to make muscular gains.

    I eat a ton of calories (well, I sorta THINK I do lol), I workout 4-5x a week lifting weights....
  8. Wats DS? Also, my Drs want me taking 3 24KU...

    Wats DS?

    Also, my Drs want me taking 3 24KU with meals and 2 with snacks. That's what it says but I'm constantly seeing how my body reacts. Like I have a mass gainer shake I drink daily. So I'll...
  9. Do those with CF have difficulty digesting protein?

    I have cf and wondered this, do i have a hard time digesting protein AND fat or just fat? f
  10. How much of your depression/anxiety is caused by CF?

    So its common in those with CF. If you have those issues, how much is caused by CF? I think 50% of it is caused by CF indirectly. For example, I would be able to gain muscle easier, I wouldn't have...
  11. I smoked cigs and marijuana, how will this effect my lungs?

    So I haven't seen my CF doctors in a full year (a little longer actually). And in that year, a lot happened.

    About a year ago (a little less), I went through a phase where I smoked cigs. I smoked...
  12. Will my insurance try to drop me if I try to get Kalydeco?

    So first off, would I benefit from it? I have two Delta F508 mutations.


    Would my insurance hate me for life and try to drop me if I asked for it and my doctor agreed? Who should I ask, my...
  13. I want disability benefits from my employer... NOW!

    So I have stayed quiet long enough about having CF. My employer has taken advantage of me, so now, its my turn to get what I deserve. But how do I go about doing this?

    I was reading on the CFF.org...
  14. Does breathing with your nose vs mouth strengthen lungs?

    Ill ways breathe with my mouth. But they say you should breath in through your nose and exhale through mouth. Why is that and does that lead to stronger lungs ?
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    Exercising with my elevation mask

    Will it make my lungs even stronger if I use the elleptical and the elevation mask I have?
  16. Ellipticals vs running ... Question about swimming

    I hate running cause it hurts my knees. Are ellipticals just as good for the lungs as running? How do you know if you're pushing yourself too much or too little?

    So swimming is a staple for my cf...
  17. Does the 'Elevation Mask Training' Work to increase lung function?

    So it basically cuts off some oxygen by some plastic parts. its a mask you wear to simulate elevation training.
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    What exactly is lung scarring?

    So obviously that part is dead. But what exactly is it? Is it an accumulation of mucous which then hardens?
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    More lung scarring

    I got chest x rays and the tech let me see. I noticed more lung scarring, although, I was a tad confused with everything because it didn't look a whole like my last chest X-ray. But from what I saw,...
  20. My Facebook rant to all those people who annoy me about Cystic Fibrosis

    To those of you who don't know what Cystic Fibrosis is, here's the definition from the CDC:
    "Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the...
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    What's it like to die with CF?

    this is a terrible question, but i was curious to know what its like to die with CF. what does it feel like? is it a peaceful death? i have cf btw
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    People take CF lightly

    So when someone asks me, 'What's CF?'. I really don't know how to explain it. I just say 'It's like a combination of Asthma and Diabetes but 20x more serious'. or anything similar to that. How do you...
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    I really want to become CF healthy

    So last time I got my FEV (I think it's called that), I scored 106%. I fear that I have decreased by a large number. My last chest x-ray I had minor lung scarring.

    But I really want to get...
  24. I probably need enzymes for medical brownies?

    So I feel like an alien sometimes. Because there are times I eat a ton of dairy or meat without enzymes, and I feel perfect. I do eat a lot of yogurt during those times, which makes me even more...
  25. Well I'd only use it if I don't have a supply of...

    Well I'd only use it if I don't have a supply of Xanax. Kinda like a back up. It works for anxiety a tad bit, just not as effective as Xanax.
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