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Type: Posts; User: TreasureGoddess

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  1. crossing my fingers that it all goes smoothly! ...

    crossing my fingers that it all goes smoothly! SO excited and thankful for this resource!!
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    Sometimes you can even find an ENT doc that works...

    Sometimes you can even find an ENT doc that works with CF patients. Schedule a visit with your CF team to discuss your concerns. Printer is right, they're the best source for you, make sure you use...
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    Fantastic!! Will pick some up and use when my son...

    Fantastic!! Will pick some up and use when my son is on zyvox!
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    Amber, the sinus flushes really do make a...

    Amber, the sinus flushes really do make a difference. Of course they don't work once the polyps get so many/so big that they block the passages. It's not horrible, make sure the water is warm for...
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    Happy Birthday Welshwitch! I've loved getting to...

    Happy Birthday Welshwitch! I've loved getting to know you on this forum and YAY YOU!!! KICKING CF's BUTT! :) Party the whole month long.
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    That's absolutely amazing!! I know the site has...

    That's absolutely amazing!! I know the site has helped me and my family and I hope it's done the same for many many others. :)
  7. What an amazing idea! I think this is a great...

    What an amazing idea! I think this is a great idea!! Also love knitting (my true love is dyeing yarn & knitting away.....) I think the idea of spending quiet time working one piece at a time in the...
  8. I forgot the biggie, not only does my son get his...

    I forgot the biggie, not only does my son get his own room to avoid getting other infections/viruses from other patients, but we schedule his admittances to go after an office sick-day visit. That...
  9. My son goes to KU Medical Center in KC. It's a...

    My son goes to KU Medical Center in KC. It's a full hospital, with just one part of one floor as the pediatric area. He has his own room, usually no fridge, but there is a fridge that patients and...
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    I agree with Printer! Please contact your old...

    I agree with Printer! Please contact your old center asap and see what they can do. Explain your health situation and ask that they contact a doctor or nurse practitioner to get you seen asap at the...
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    Cam, hoping you are doing better. We are all...

    Cam, hoping you are doing better. We are all praying for you too. My son is on zocyn quite often and that's a powerful antibiotic. I'm hoping it will give you some relief. Please always feel...
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    Ok this is the coolest thing I've ever seen. I've...

    Ok this is the coolest thing I've ever seen. I've never heard of an IV ball before. I'm asking about that for our next home IV setup!!
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    I'm treasuregoddess. :) great idea!

    I'm treasuregoddess. :) great idea!
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    joannemk, I'm so very sorry for your loss. OH...

    joannemk,
    I'm so very sorry for your loss.
    OH absolutely I am thankful to have all these treatments and medicines as that's what's keeping my kid mostly healthy! We live in a time where there is...
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    So very, very happy for you! Also a note for...

    So very, very happy for you! Also a note for Connor as well as other parents with young ones getting stressed (and teens too)....please ask if you have care life specialists, music therapists or...
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    AMEN!!! :) I just got back from my...

    AMEN!!! :) I just got back from my sister-in-law's house. Her daughter is going gluten free and it's the most dramatic thing my SIL has ever dealt with in her life. She was so very VERY stressed...
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    Very cool! I'll talk to my son about making one...

    Very cool! I'll talk to my son about making one for CF Awareness specifically. He did get chosen to tell "his story" of how Children's Miracle Network Hospitals has helped him and to help encourage...
  18. ok now I'm hungry too! :) Looks yummy. May add...

    ok now I'm hungry too! :) Looks yummy. May add it to the freezer, anything that tastes good and has extra fat & calories is good to try!
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    Congrats! Hope baby and mama stay healthy and...

    Congrats! Hope baby and mama stay healthy and happy!! Make sure to get extra rest whenever you can and eat, eat, eat!! Nap every time your little one does! Your body has been through a lot and...
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    Day 5 was kind of a whopper for my son. He felt...

    Day 5 was kind of a whopper for my son. He felt GREAT for the first time and probably did too much running about outdoors with his friends. About 8pm came inside, said he felt bad and just laid...
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    These type of posts give such hope and joy to our...

    These type of posts give such hope and joy to our CF community! Thank you for sharing! beautifulsoul, stories like yours are my very favorite to share with my son (15 yrs) when we have discussions...
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    We FINALLY have the medicine scheduled to...

    We FINALLY have the medicine scheduled to deliver! My son gets to start on TUESDAY (crossing fingers it actually works out). Too many hoops to jump through, and things seemed to fall through the...
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    Ratatosk, HA "yes, I've licked him"!! Made my...

    Ratatosk, HA "yes, I've licked him"!! Made my whole day! :) We're STILL waiting to get through the final issues due to our insurance company not playing nice. Hoping to have my kid started on...
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    Still waiting..... reading lots of encouraging...

    Still waiting..... reading lots of encouraging updates from those feeling better already! Sure hope this helps all these families!
  25. I'm somehow not technical to be able to do a...

    I'm somehow not technical to be able to do a search for you and post a link, but there is a LOT of GREAT information here on the forums. I'd go into the teens/young adult sections as well as the...
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