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Type: Posts; User: jpear1977

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    me too-

    My son is 12 and would love to talk with others who understand what he is going through. My facebook name is Julie Kawalec-Pearson
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    F508/s945l

    [QUOTE=triples15;1004754]Hi Heather!

    I have DF508/S945L! S945L is a more rare mutation, hence why they didn't find it until they did the expanded genetic testing. I tested borderline my first...
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    ANother option

    [QUOTE=PennyBK;1082746]Hi all - Hoping for some insights on your experiences with treating MRSA. I'm 27 and have been culturing MRSA for 10+ years. It's the only bug I culture consistently. I've...
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    Group chat

    I think we have tried to do this before. But I know my son has not wavered in wanting to speak with someone. What do you think is best. Trying to set up a hangouts/skype date or making their own...
  5. also relocating

    we are relocating to Texas from Illinois. We got to UW Children's hospital in Madison, WI and have received excellent care for my son. My oldest lives in the Odessa, TX area and we want to be closer...
  6. f508 and S945L

    My son has the same mutation. How is your child now. Mine is on treatments twice a day, azithromycin (MWF), pulmozyme, and saline chloride, and now starting Vancomycin as a neb for an infection.
  7. My son has the same mutation. How is your child...

    My son has the same mutation. How is your child now. Mine is on treatments twice a day, azithromycin (MWF), pulmozyme, and saline chloride, and now starting Vancomycin as a neb for an infection.
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    My son is nine and was recently diagnosed with...

    My son is nine and was recently diagnosed with F508 and S945L. I would love to hear how everyone is doing that has this mutation and what treatments you are one. I can't seem to find anyone with the...
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