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I went to nursing school, but after I got licensed I didn't want to expose myself to all the germs. So I got my MBA and weaseled my way into healthcare IT. I think IT is a great career for CF. I am...

Has anyone ever had a capsule endoscopy done? I have one scheduled for Friday and just wanted to know your experience with it. Thanks.

I struggle with this as well. I crave salt constantly, which usually equates to junk food. What I found is that I try not to worry too much about what I'm eating because it stresses me out! But I do...

I have not cultured that before, but I know a lot of people have it. Hoping you're able to get rid of it and get your numbers back up :)

Great news!

Does she currently do any type of maintenance to keep things moving (i.e. Miralax)? I also have a lot of issues with DIOS. I just got out of the hospital for an obstruction a couple weeks ago, and it...

Probably best to get a sweat test and/or genetic test done if you're concerned about either of you having CF. I was very concerned that my biological son might have CF after he was born, because he...

So exciting!!!

I typically run around 80%. One time I was 55%, but I really didn't feel bad. Turns out I was just exhausted from having two little kids. I found that when I'm tired or stressed, my numbers go down...

Can't wait to see it!

You're very talented! I enjoyed it :)

I have been on Symdeko since March, but have not reduced any of my treatments. However, I did notice that I do not have to really work very hard to cough stuff up during my vest/Aerobika any longer....

I am very interested in this topic, as I have heard of plenty of people who are carriers with CF-related symptoms. I have heard of many individuals who have either had digestive, lung, or sinus...

Hi -
I have been on Symdeko since March. I would say that my cough definitely feels different. I am experiencing more of a dry cough now compared to my pre-Symdeko junky cough. My lungs feel...

I started having chronic low iron a few years ago. I am on a maintenance dose of one 325mg pill every other day. We have come to the conclusion that it's from menses or absorption issues. Unsure if...

I definitely had headaches for a few weeks when starting both Orkambi and Symdeko. They eventually went away. Good luck!

Although I'm not on Kalydeco, I am on Orkambi and have had similar weight gain problems. I did not have a problem gaining weight before starting Orkambi. Once I started taking it, I gained about 15...

Thanks Amber!

Great news Ratatosk. That makes me so happy to hear ❤️

Jaimers - Yes! I can't wait for the new ones to come out. Some of them look so promising. :)

Thanks jricci. It's nice to know that others have felt the same. I like that quote!

Thank you Golubicc.

Gorgeous piece of work! Got my vote!

My reflection for today...

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I’ll never forget the emotions I was feeling that morning. I had just gotten to work and was sitting in my cubicle. Everyone was going about their normal day at...

Thanks everyone for your replies! After seeing my doctor last week, getting a CT scan, extensive PFT's, etc...we have determined it's asthma. I'm unable to tolerate almost all inhaled medications...