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  1. We have one for my two teens with CF. They share...

    We have one for my two teens with CF. They share the base but each have their own mouthpieces. They love it. They use this WITH the vest (they use Smartvest) and when they travel (my daughter just...
  2. Awesome CF Ed Day in Richmond, VA area on March 28- open to all

    Are you in the Richmond VA area? Saturday, March 28 at 4 pm, Children's Hospital of Richmond is hosting a great CF Family Education event with Michael Boyle speaking (he did the NACFC keynote last...
  3. Awesome CF Family Ed Day planned in Richmond, VA area- open to all

    Are you in the Richmond VA area? Saturday, March 28 at 4 pm, Children's Hospital of Richmond is hosting a great CF Family Education event with Michael Boyle speaking (he did the NACFC keynote last...
  4. Replies
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    Hi! Like many others, I am not against simple...

    Hi! Like many others, I am not against simple supplements- both of my teenagers with CF take vitamin D, calcium, magnesium, probiotics, and garlic. They also eat healthy foods, not just the "high...
  5. REGISTER NOW FOR NEW TELECLASS: Winning with CF

    REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tacticsfor Raising Healthier Kids™

    Dear Parents and Guardians ofKids with CF,
    Wouldn't it be nice to knowabout the parenting...
  6. REGISTER NOW FOR NEW PARENTING TELECLASS: Winning with CF

    REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™

    Dear Parents and Guardians of Kids with CF,
    Wouldn't it be nice to know about the parenting...
  7. REGISTER NOW FOR NEW PARENTING TELECLASS: Winning with CF

    REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™

    Dear Parents and Guardians ofKids with CF,
    Wouldn't it be nice to knowabout the parenting...
  8. How did you get a new version of the SV? My...

    How did you get a new version of the SV? My daughter has one and she would love a new one. Thanks!
  9. Upcoming Class for CF Parents: Winning with CF -Registration Now Open

    Hi All! I am starting to spread the word about my upcoming parenting teleclass (by phone on Sunday evenings) for CFparents. Registration is open and the start date is Feb 23. Some of you herehave...
  10. Upcoming Class for CF Parents: Winning with CF -Registration Now Open

    Hi All! I am starting to spread the wordabout my upcoming parenting teleclass (by phone on Sunday evenings) for CF parents. Some of you here have attended so you know how much it helps with our...
  11. Thread: Cutting

    by LisaGreene
    Replies
    8
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    1,906

    Ashland, so sorry you are facing this. You are...

    Ashland, so sorry you are facing this. You are doing the right things as far as getting therapy. And Allansarmy, what a great reply. It sounds like you went through a lot.

    There are no easy...
  12. I would definitely have the child life specialist...

    I would definitely have the child life specialist explain this. They have dolls and samples of the medical equipment to show your child what will happen plus the skills and language to explain at...
  13. Thanks All for taking the time to do the survey!...

    Thanks All for taking the time to do the survey! "Above All", I'd love to chat. :-) I am very open to feedback. I'll post my results here, the highlights anyways since the actual paper(s) will be...
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    It is hard finding out about things like this but...

    It is hard finding out about things like this but the "silver lining" is that you will be carefully watched and taken care of. My son (with CF) had the same thing when I was pregnant 14 years ago...
  15. Please help with research for creating a "Newly Diagnosed" class. Thanks. :-)

    Hi All, I am the mom of two with CF (ages 14 and 12). I have been pretty active here in the past but have been terribly busy lately with kids, college, and work.

    I am working on my master's...
  16. Please help with research for creating a "Newly Diagnosed" class. Thanks. :-)

    Hi All, I am the mom of two with CF (ages 14 and 12). I have been pretty active here in the past but have been terribly busy lately with kids, college, and work.

    I am working on my master's...
  17. Infants w/ CF born now have a great chance at a long life :-)

    Working on a paper about CF and transition for my Master's degree, I stumbled on this quote (from Hewer and Tyrell) that I thought interesting about infants born recently with CF having a mean...
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    Dear Bloggymom, I am so sorry you are having to...

    Dear Bloggymom, I am so sorry you are having to go through all of this. It's a double edged sword, being strong and independent. Then everyone leans on YOU. It's human nature. You are clearly a...
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    Welcome and so glad you found this group. There's...

    Welcome and so glad you found this group. There's alot to learn... Ignore the scary stuff you might read out there, there is so much hope for our kiddos and especially for babies. There are some very...
  20. CF Parenting Teleclass in February, Registration open now

    Hi All! I am starting to spread the word about my upcoming teleclass (by phone) for CF parents starting on February 3. Some of you here have attended (and can audit for free) so you know how much it...
  21. CF Parenting Teleclass in February, Registration open now

    Hi All! I am starting to spread the word about my upcoming teleclass (by phone) for CF parents on February 3. Some of you here have attended (and can audit for free) so you know how much it helps...
  22. CF Parenting Teleclass in February, Registration open now

    Hi All! I am starting to spreadthe word about my upcoming teleclass (by phone) for CF parents starting on February 3. Some of you here have attended (and can audit for free) so you know how much it...
  23. Here are a bunch of ideas including do's and...

    Here are a bunch of ideas including do's and don't when they resist; also how to teach a preschooler to take them. Link: http://www.happyheartfamilies.citymax.com/FoodIssues.html
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    1,074

    Ha! Too funny! I'll bet you've read it more than...

    Ha! Too funny! I'll bet you've read it more than I have. ;-) I think I need to re-read it again, it's been a little while. My problem is that when I do, I start finding new things I want to say; I...
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    Hi Aboveallislove (love your name, by the way)....

    Hi Aboveallislove (love your name, by the way). Thank you so much for your kind words about my work and your wise observations. You make some very good points and I am so glad you brought them up!
    ...
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