Search:

Type: Posts; User: Mekikya

Search: Search took 0.00 seconds.

  1. Replies
    22
    Views
    8,099

    My son just started taking Trikafta this week, we...

    My son just started taking Trikafta this week, we are on day 3. So far haven't seen much of a change in his cough or purging yet but we are lucky in that he's always been pretty healthy, 80% or...
  2. Yeah frankly, I'm tired of footing the bill for...

    Yeah frankly, I'm tired of footing the bill for other countries. We do the research and spend billions and billions of dollars on it, and then Canada and the UK come in with their stupid national...
  3. Replies
    3
    Views
    1,802

    well I am not sure about a long term solution but...

    well I am not sure about a long term solution but when I get desperate or I have a lapse in my insurance, I make my own for my son. I read this online a long time ago.

    I get a gallon of distilled...
  4. Replies
    19
    Views
    17,459

    Adults with CF what are your jobs?

    I have a son with cf. Thinking ahead... just wondering what skills would be useful for him to learn now that might be helpful for a career that you can work from home. I want him to be as self...
Results 1 to 4 of 4