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  1. Ugh, found this thread while browsing and it...

    Ugh, found this thread while browsing and it makes me cringe. I'm sooo sorry for some of the experiences you have had!

    My old school training makes me more inclined to do hand CPT unless the...
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    Funny to get an email from the CF Forums today,...

    Funny to get an email from the CF Forums today, it being the third anniversary of Heather's passing in ICU. I marked it by stepping out the door of an airplane yesterday, the top of Heather's Bucket...
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    It has been exactly one year ago today since...

    It has been exactly one year ago today since Heather left. Her life was commemorated today by a beginning of her Bucket List. A school friend of hers and I went to jump out of an airplane at 12,500...
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    Good bye, my love

    Thought of you today and hope all is well with a new baby girl in your arms. Wishing you much strength....

    john
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    Good bye, my love

    Thought of you today and hope all is well with a new baby girl in your arms. Wishing you much strength....

    john
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    Prayers...advice...anything

    Has your husband had any infections that can be traced to the ventilator? One of the big problems with a vent is that the patient is really susceptible to getting pneumonias that can be traced to the...
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    Prayers...advice...anything

    Has your husband had any infections that can be traced to the ventilator? One of the big problems with a vent is that the patient is really susceptible to getting pneumonias that can be traced to the...
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    Farewell Dear Heather

    Gone six months today, and I can still see her face and hear her voice (and still have some of her texts in my phone). On her December birthday we released balloons with messages on them at the...
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    Farewell Dear Heather

    Gone six months today, and I can still see her face and hear her voice (and still have some of her texts in my phone). On her December birthday we released balloons with messages on them at the...
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    cure for chronic rejection

    Priorities are all wrong in the world. If the money that was poured into the pockets of rap 'musicians' in one year could be diverted to research, I am sure we would have a cure. Don't even start on...
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    3,027

    cure for chronic rejection

    Priorities are all wrong in the world. If the money that was poured into the pockets of rap 'musicians' in one year could be diverted to research, I am sure we would have a cure. Don't even start on...
  12. Replies
    17
    Views
    3,027

    cure for chronic rejection

    Priorities are all wrong in the world. If the money that was poured into the pockets of rap 'musicians' in one year could be diverted to research, I am sure we would have a cure. Don't even start on...
  13. Replies
    120
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    15,844

    Patiently Waiting for a Call

    And the service was quite beautiful. Many, many people there. We had a continuous photo show of Heather on the large screen, her mom made it through a tearful eulogy, and the music went very well. It...
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    120
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    15,844

    Patiently Waiting for a Call

    And the service was quite beautiful. Many, many people there. We had a continuous photo show of Heather on the large screen, her mom made it through a tearful eulogy, and the music went very well. It...
  15. Replies
    120
    Views
    15,844

    Patiently Waiting for a Call

    And the service was quite beautiful. Many, many people there. We had a continuous photo show of Heather on the large screen, her mom made it through a tearful eulogy, and the music went very well. It...
  16. Replies
    120
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    15,844

    Patiently Waiting for a Call

    So here it is, Saturday, and Heather's funeral gathering is in two hours. I am supposed to get up and speak to what will be a large crowd, and I'm still not sure what I am going to say. How do I...
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    120
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    15,844

    Patiently Waiting for a Call

    So here it is, Saturday, and Heather's funeral gathering is in two hours. I am supposed to get up and speak to what will be a large crowd, and I'm still not sure what I am going to say. How do I...
  18. Replies
    120
    Views
    15,844

    Patiently Waiting for a Call

    So here it is, Saturday, and Heather's funeral gathering is in two hours. I am supposed to get up and speak to what will be a large crowd, and I'm still not sure what I am going to say. How do I...
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    Farewell Dear Heather

    On Thursday August 18th, Heather Rachelle Best of Wenatchee, Washington passed peacefully in the ICU at the University of Washington in Seattle. She was 25 and had fought hard after her new lungs...
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    Farewell Dear Heather

    On Thursday August 18th, Heather Rachelle Best of Wenatchee, Washington passed peacefully in the ICU at the University of Washington in Seattle. She was 25 and had fought hard after her new lungs...
  21. Replies
    14
    Views
    8,640

    Farewell Dear Heather

    On Thursday August 18th, Heather Rachelle Best of Wenatchee, Washington passed peacefully in the ICU at the University of Washington in Seattle. She was 25 and had fought hard after her new lungs...
  22. Replies
    120
    Views
    15,844

    Patiently Waiting for a Call

    August 18th: Two weeks ago I went to see Heather in the hospital just after she came off the vent again. It gave her parents time off to leave the place, and she and I visited for 12 hours or more....
  23. Replies
    120
    Views
    15,844

    Patiently Waiting for a Call

    August 18th: Two weeks ago I went to see Heather in the hospital just after she came off the vent again. It gave her parents time off to leave the place, and she and I visited for 12 hours or more....
  24. Replies
    120
    Views
    15,844

    Patiently Waiting for a Call

    August 18th: Two weeks ago I went to see Heather in the hospital just after she came off the vent again. It gave her parents time off to leave the place, and she and I visited for 12 hours or more....
  25. Replies
    17
    Views
    3,027

    cure for chronic rejection

    There are lots of scientists and researchers working on the problem, but none of them would grab publicity until it was a reality. Unfortunately, if you hear news like this it is all manufactured by...
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