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Type: Posts; User: mamaScarlett

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  1. Replies
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    Oh also-one of my meds wasn't available via...

    Oh also-one of my meds wasn't available via eclipse, the imipenem. It was that particular home care co didn't carry it. So my nurse opted for a different home care co that did carry it....
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    Hi, I'm on Imipenem, Tobramycin and Vancomycin...

    Hi, I'm on Imipenem, Tobramycin and Vancomycin all via eclipse. They're also giving me 500cc a day of hydration via eclipse. I'm hooked up much of the day but I don't care-anything is better than a...
  3. I think most people see me living my life to my...

    I think most people see me living my life to my full, they don't feel the need to pity me and see that I don't have time for pity!
    I hate pity. I do like understanding-but they are very different...
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    My clinic says exercise is crucial and encourages...

    My clinic says exercise is crucial and encourages as much as I can do. Right now I run about 12 miles a week, and do core and weights in between running days. Hydration and salt replacement is vital....
  5. My C doctor is extremely supportive of holistic...

    My C doctor is extremely supportive of holistic treatment in conjunction with medical treatment. She even has acupuncture, massage, ect treatments for in hospital patients. She always suggests...
  6. For me, absolutely. I never cough up blood. Once...

    For me, absolutely. I never cough up blood. Once in a blue moon if I'm forced to work with bleach based cleaning products I will have streaks of blood or even tiny dark balls of it. For this reason I...
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    I would love to try this. I found it on Pintrest...

    I would love to try this. I found it on Pintrest of all places, and watched some of the videos out there. I don't see a chance in getting insurance to pay for it, or even to 'rent' it to me, since I...
  8. Support is an EXTREMELY important part of Cf, and...

    Support is an EXTREMELY important part of Cf, and emotional health too. Since Cf is an isolating illness, its even more important. I believe for too long its been an overlooked aspect of Cf care. ...
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    I remember her kindness as I was a new patient at...

    I remember her kindness as I was a new patient at old St. Vincent's, getting settled in my room for my very first stay there. She was always very sweet, to everyone. As was her adorable little girl...
  10. Cipro doesn't bother me at all, while I have...

    Cipro doesn't bother me at all, while I have trouble tolerating Levaquin for sure.
  11. I'm sorry for the stressful situation you're in,...

    I'm sorry for the stressful situation you're in, no doubt you have many questions and what ifs about your baby girl. (congratulations on her birth, btw :)
    I was diagnosed at 1 yr old, so Cf is all...
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    Not realistic at all, but I didn't expect it to...

    Not realistic at all, but I didn't expect it to be, being on primetime tv and all. I did have a few laughs at some scenes, which reminded me of life back in the day-80s, 90s, we did stay in the...
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    The new DAS card is by no means a no wait card-no...

    The new DAS card is by no means a no wait card-no such card exists now. It has your picture on the front, and lines on the back for cast members to write a time slot window for you to return. So what...
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    Yes I did too. Glad to hear this has been taken...

    Yes I did too. Glad to hear this has been taken care of.
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    No mental symptoms, but I did sprain my ankle...

    No mental symptoms, but I did sprain my ankle while on Levaquin, and it was from a very minor bang-nothing worthy of causing a hairline fracture. That was a red flag of concern.
    If your son is...
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    Mine broke also, just a few months into using it....

    Mine broke also, just a few months into using it. The exact part you dscribed too. Cf services overnighted me one right away for free.
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    Drugs are categorized for pregnancy classes A...

    Drugs are categorized for pregnancy classes A through D and X, A being well studied and proven safe to D and X being studied and proven dangerous to a growing fetus. So for us pregnant moms with Cf,...
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    Pain in belly during pt

    Anyone ever have bad pain in their lower pregnant belly while vesting or coughing? If so, did anything help?
    It seems similar to what people describe as round ligament pain. This is my 3rd...
  19. Made that trip many times. No checking of...

    Made that trip many times. No checking of medications or equipment at all. Just need your valid passport and license.
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    I'm sorry to hear you're having liver issues...

    I'm sorry to hear you're having liver issues during a stressful situation. No doubt the blood test will accurately reveal whether or not you're pregnant. If you are a full month late, a simple...
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    At that age I was pretty compliant, but being...

    At that age I was pretty compliant, but being dx'd at 2, PT was all I ever knew. I believe its alot harder when you are dx'd later. A whole new life different from what you're used to.
    Around 10-11...
  22. I can understand your concern. And I agree with...

    I can understand your concern. And I agree with others that you really only want to commit to a pet if you are ready.
    As far as germs, there are 2 schools of thought with animals and human...
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    I have this problem when I run. By the end of a...

    I have this problem when I run. By the end of a race, my eyes are burning. I've found wearing a head band really helps. They make ones specifically for exercise induced sweat, which is basically us...
  24. Yes I did alter something after month 11 of ttc...

    Yes I did alter something after month 11 of ttc with my 2nd. I sat for a while with my OB and went over my cycle. They felt I was ovulating earlier than we thought, earlier than the OPK's were...
  25. It is very hard to ttc when you see so many...

    It is very hard to ttc when you see so many around you happily entering into pregnancy, especially without the added burden of cf that we have. Its normal to feel the way you do. Cf adds a layer of...
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