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    Market Research Opportunity - Adults only

    Market research opportunity: 1 on 1, 1 hour session talking about experience with elastomeric pumps (Example: Ambulatory elastomeric, Ambulatory electronic or large volume infusion pumps)....
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    Thank you Cardinal! I'm actually in a much...

    Thank you Cardinal!

    I'm actually in a much better place than I was 4 years ago when I posted this thread. Much of my health success has been based on nutritional changes. 2008-2012 I was blasted...
  3. Live int'l call featuring ME: re: nutrition, CF, & a work from home opportunity

    I'm grateful and honored to announce that I will be speaking TONIGHT on an International Call and would like to invite you all to join in!
    I will speak to the importance of nutrition in my battle...
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    I'm interested! I'm 35 yo female with cf. We're a...

    I'm interested! I'm 35 yo female with cf. We're a 2 for 1 as my 6 yo son has it too and he's very photogenic if you wanted him too :-) I was in the kalydeco trials and am succeeding with cf. we were...
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    New Great Strides website question

    Is it possible to add a walker manually like a team leader could on the old site or must every walker sign up for themselves?
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    you may want to post this in the family section...

    you may want to post this in the family section as typically this section is people with cf who are seeking or are pregnant. I believe you can get the results from the CVS test but may require an...
  7. Thread: Masturbation

    by LouLou
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    I think your post is interesting Enzo and I'm...

    I think your post is interesting Enzo and I'm trying to understand the root off your question or discussion point. I would not consider "mass media" as a litmus test for what is normal. So you are...
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    Very interesting...my doctor says it is not...

    Very interesting...my doctor says it is not transferred person to person (maybe the lymph node specific type?) - BUT everyone's reservation and my own certainly makes me concerned. I think I'll stay...
  9. Anyone set up a self insured medical plan to lower the tax deduction threshold?

    Some of you may remember the tax videos a few of us made a few years ago. I'm all about deducting everything I can due to cf or business, etc. If you and your spouse have a business (self employeed)...
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    The pro's of a port is managing it yourself and...

    The pro's of a port is managing it yourself and not having to be exposed to the hospital seen each time you need to do IVs. I access at home and get the drugs delivered and get rolling. I'm glad I...
  11. I don't think it applies since you are doing IVF....

    I don't think it applies since you are doing IVF. No need for the sperm to swim since the embryo is transferred. Pre-seed is a lubricant for sex that is more "sperm friendly" than say K-Y. Some cf...
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    Coughing out plugs daily

    I'm wondering what is going on with my body and why I am either producing these plugs or getting rid of old plugs. They do not seem very old and are light in color. Strange! I guess better out than...
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    friend's child had a mycobacteria absess

    One of my very closest friend's daughter (age 4 now) had a lymph node swell so much it was visible on her neck. The area was also reddened. After much go round and various treatments (draining,...
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    If I had not dealt with hemoptysis I may have...

    If I had not dealt with hemoptysis I may have considered a homebirth due mostly to being germophobic of the hospital. Rightly so, my son and I picked up MRSA while in the hospital for delivery which...
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    This certainly seems fraudulent. I'm glad it...

    This certainly seems fraudulent. I'm glad it didn't cost you more but still seems wrong!!
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    Hi C! This has happened throughout my use of all...

    Hi C! This has happened throughout my use of all inhaled antibiotics throughout the years. I don't know what causes it sometimes and not others but find if I stay consistent with inhaled abx I do...
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    I have had the flu shot every year since whenever...

    I have had the flu shot every year since whenever it became available. I am 35 years old with cf. In 1999, I didn't take it and ended up with pneumonia and lost 25% of my lung function which I never...
  18. Thread: Apology.

    by LouLou
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    This post speaks to what a great community this...

    This post speaks to what a great community this is. Nice Pat!
  19. Thread: embolisation

    by LouLou
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    Hi I had a great experience with an embolization...

    Hi I had a great experience with an embolization for a mild/moderate case of hemopytis (daily bleeding). Here is a great article backing up the practice of embolizing before it becomes massive though...
  20. Thread: lip cuts

    by LouLou
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    I would recommend you get a prescription for...

    I would recommend you get a prescription for nystatin lozenges. This is a typical thing to have happen after a course of antibiotics because the good flora is gone, and bad (including too much yeast)...
  21. I too love your attitude Laney. No real advice...

    I too love your attitude Laney. No real advice other than that pre-seed is a good *sperm friendly* lubricant that may help the sperm swim more freely before getting stuck in cf mucus. I realize with...
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    I'll also second the others. Request an overnight...

    I'll also second the others. Request an overnight sleep study!
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    Due to the lack of minerals in our soil (erosion,...

    Due to the lack of minerals in our soil (erosion, over farming, etc.) our food is not providing the nutrition it once was. Soil depletion is a real issue for all of us. Add in absorption issues and...
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    I'd still call the legal hotline. It's good to...

    I'd still call the legal hotline. It's good to brush up on what your rights are so if they try some silly business to see how much they can get away with you can call them out. Good luck & keep us...
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    Be careful using this or any other spray...

    Be careful using this or any other spray regularly at home. Aerosols are probably not good for anyone but especially those with compromised lungs.
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