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  1. This is a great tool by the CFF:...

    This is a great tool by the CFF: https://www.cff.org/ccd/
    Once you select your filter criteria, you'll get a list of all care centers in the area. The names of the care centers are links (they're...
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    Hi RWCO, We work with one of the best CF centers...

    Hi RWCO,
    We work with one of the best CF centers in the country - Boston Children's Hospital. Can you please share a reference that details how chloride levels rise over time? From every study I...
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    Hi Jricci, Thanks so much for the comments and...

    Hi Jricci,
    Thanks so much for the comments and for the reply! Yes, I would love to see the full article. I had tried to get my son in that original quoted study but we are on opposite coasts so it...
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    Warning to those with the A455E mutation

    Hi, I have been waiting 8 years for Ivacaftor to be approved for residual function CFTR mutations. The day finally came on May 17th and soon after, we had my son signed up and taking his first dose....
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    Anyone on Kalydeco seen changes in LFT's?

    Saveferris, sorry about the bad link! I have no idea what Cymbalta even is. The appropriate link is http://pi.vrtx.com/files/uspi_ivacaftor.pdf

    Havoc, the MSDS has this for the Kalydeco from the...
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    Anyone on Kalydeco seen changes in LFT's?

    From the prescription information (http://pi.lilly.com/us/cymbalta-pi.pdf), it looks like Kalydeco had a very similar LFT profile when compared to the those on the placebo. Based on the info below,...
  7. Thread: vx-661

    by knobby
    Replies
    46
    Views
    9,230

    vx-661

    From what I've always read, Vertex never believed that vx-809 would completely treat CF, even when combined with vx-770 so continued development of more effective compounds was always the goal.
    One...
  8. Thread: vx-661

    by knobby
    Replies
    46
    Views
    9,230

    vx-661

    From what I've always read, Vertex never believed that vx-809 would completely treat CF, even when combined with vx-770 so continued development of more effective compounds was always the goal.
    One...
  9. Thread: vx-661

    by knobby
    Replies
    46
    Views
    9,230

    vx-661

    From what I've always read, Vertex never believed that vx-809 would completely treat CF, even when combined with vx-770 so continued development of more effective compounds was always the goal.
    <br...
  10. Replies
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    1,056

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products...
  11. Replies
    9
    Views
    1,056

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products...
  12. Replies
    9
    Views
    1,056

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products...
  13. Replies
    9
    Views
    1,056

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products...
  14. Replies
    9
    Views
    1,056

    FDA slowing progress

    The recent news articles about two big CF drugs not making it to market because of the FDA have left me a bit nervous. I have to wonder what impact this will have on the pharmas that have products...
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