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Type: Posts; User: Shelby Delacruz

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  1. Wow, she sounds like an amazing woman! And you're...

    Wow, she sounds like an amazing woman! And you're a very strong man. Thanks very much for that post, it lifts me up a little and just adds to the fact that I love being here for him through this, I...
  2. The docs came in and told me his alcaligene that...

    The docs came in and told me his alcaligene that knocked him off the transplant list is xyloxidans. It's resistant to every antibiotic known to man so far, and everything that's been tested with his...
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    They had Infectious Disease out today to get...

    They had Infectious Disease out today to get advice from them on which antibiotic to use, he's resistant to all antibiotics known to man, and the only ones that it's even remotely sensitive to is...
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    Xylosoxidan

    My husband has this alcaligene and it's preventing him from getting a lung transplant, and is possibly the cause of his recent sudden health decline. The doctors here in USC have no other meds that...
  5. I just spoke to the docs again, the alcaligene...

    I just spoke to the docs again, the alcaligene that has him frozen on the transplant list is called Xylosoxidans ssp. It's resistant to every antibiotic given to him, Amikacin, Cefepime, Ceftazidime,...
  6. We just talked to ID, infectious disease, and the...

    We just talked to ID, infectious disease, and the lady we spoke with gave me completely different info than the doctors did a week ago. She said he doesn't have the cepacia, even though the docs said...
  7. Wow thanks, great info. Will be bringing all of...

    Wow thanks, great info. Will be bringing all of this up, thanks again!
  8. I just got a print out of all the bugs my husband...

    I just got a print out of all the bugs my husband has. They read as follows: Pseudomonas Aeruginosa, Multi-drug resistant Pseudomonas aeruginosa+, Burkholderia Species, Stenotrophomonas maltophilia,...
  9. Alrighty thanks a bunch !

    Alrighty thanks a bunch !
  10. We are currently at USC, and they've knocked him...

    We are currently at USC, and they've knocked him off their list permanently. His doctors aren't trying to find anywhere else to take him, they're basically just doing the same ole same ole. While I...
  11. Wow! That's great to hear Kyle, we're happy for...

    Wow! That's great to hear Kyle, we're happy for you. This sounds like the best viable option for us as well, I really don't like this research center. Too many noobs poking around without knowing a...
  12. Husband with CF, declining health,lungs functioning at less than 20%,what can be done

    Hi, my name is Shelby, my husband's name is Brandon. He has CF, the mutation F508del and P. aerugonisa, which knocked him off of Keck Hospital's transplant list earlier this year. In mid-july we were...
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    Hope for Brandon!

    This is a donation page for Brandon Delacruz. He is a 23 year old, suffering from Cystic Fibrosis. He has recently been given a year left to live.

    He doesn't want anything extravagant or fancy,...
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