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  • atrippet's Avatar
    01-13-2019, 10:28 PM
    I typed this long reply but I don't think it went through. I still have elevated enzyme levels and unfortunately liver damage. May be from cf in...
    1 replies | 1246 view(s)
  • atrippet's Avatar
    01-13-2019, 10:13 PM
    atrippet replied to a thread Drop in Fev1 in Adults
    Before I saw your post I was going to mention mycobacterium. It's a silent dropper. I was lucky to have it treated last year at National Jewish in...
    5 replies | 2474 view(s)
  • atrippet's Avatar
    01-13-2019, 10:02 PM
    atrippet replied to a thread Altitude Tent? in Adults
    I moved to Colorado with a higher altitude than I am used to. My o2 has definitely gone down. I've acclimated but I would think this would be...
    3 replies | 1810 view(s)
  • atrippet's Avatar
    01-13-2019, 09:55 PM
    atrippet replied to a thread ENT in Denver in Adults
    Dr. Ghogomu in Denver is wonderful. He comes recommended for people with cystic fibrosis. My husband had a huge bleed after sinus surgery and this...
    2 replies | 1595 view(s)
  • atrippet's Avatar
    01-13-2019, 09:36 PM
    I do something called an IPV. Or intrapulmonary percussive ventilation. It is an old school treatment. I had 3 different vests, they never made me...
    6 replies | 1356 view(s)
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About atrippet

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Amanda♡36 years old with cf♡df508 and e60x♡cfrd♡liver disease♡mom to a non cf child

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