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  • jsg's Avatar
    05-01-2018, 04:57 PM
    Hello! My 1 year old son was diagnosed with CRMS based on NBS (intial IRT 92). Full sequence shows Delta 508 and one mutation that two labs...
    3 replies | 511 view(s)
  • jsg's Avatar
    04-30-2018, 12:14 PM
    jsg posted a visitor message on emason's profile
    Thanks so much for your reply. I'm just seeing this message now as I haven't logged in since Sept. I have my child's third sweat test tomorrow and am...
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    Oh I am so sorry! I never was notified that you messaged me. We have a CRMS group on Facebook if you are interested?

    Honestly it gets better! It's hard in the beginning because you are always looking for signs but eventually it becomes a new normal and it's not as overwhelming. You really should come to the Facebook group! We have over a hundred members who have a child(ren) with CRMS! https://www.facebook.com/groups/CysticFibrosisCRMS/
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