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  • ToriMom's Avatar
    04-20-2017, 02:29 PM
    ToriMom replied to a thread Mycobacterium Abscessus in Adults
    Wow! I'm inspired by the personal stories on this thread...especially those who managed to keep their jobs (or school or families) going through...
    12 replies | 1311 view(s)
  • ToriMom's Avatar
    04-17-2017, 10:17 AM
    ToriMom replied to a thread Increased cough in Adults
    How is your son feeling? Any improvements? How is he adjusting to the Tobi? Michelle
    31 replies | 2098 view(s)
  • ToriMom's Avatar
    04-15-2017, 02:01 PM
    ToriMom replied to a thread How long to baseline? in Adults
    I am sorry to hear your son is not well. Is this his first PICC? Remind me how old he is...also, do you know how they will place it...conscious or...
    19 replies | 1118 view(s)
  • ToriMom's Avatar
    04-15-2017, 12:30 PM
    ToriMom posted a visitor message on ToriMom's profile
    Oh this sounds great! I have never had a Facebook account but maybe I will use my husband's or just create one for CF research. Ill let you know,...
  • ToriMom's Avatar
    04-15-2017, 12:17 PM
    ToriMom replied to a thread Mycobacterium Abscessus in Adults
    I want to thank everyone who has responded to me. I really needed to hear some personal stories from other CF patients. Thank you for taking the...
    12 replies | 1311 view(s)
  • ToriMom's Avatar
    04-10-2017, 08:08 PM
    ToriMom started a thread Mycobacterium Abscessus in Adults
    Hello Friends! Well...we have gotten some bad news today. My sixteen-year-old daughter is now culturing Myco Abscessus. I am actually not that...
    12 replies | 1311 view(s)
  • ToriMom's Avatar
    04-10-2017, 07:53 PM
    ToriMom replied to a thread Increased cough in Adults
    I want to send my encouragement your way as well. My Autistic (now 20, no CF) son has an awful time whenever he gets a cough. It really bothers him,...
    31 replies | 2098 view(s)
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2 Visitor Messages

  1. Oh this sounds great!
    I have never had a Facebook account but maybe I will use my husband's or just create one for CF research. Ill let you know, and THANK YOU
  2. I run a secret group on Facebook for people with CF and NTM, mainly abscessus. If you want to join let me know. You will have to be friends with me or someone else in the group for us to add you, but you can unfriend once in. It is a super supportive, knowledgeable group. Mainly mom's.
    Lori Devoti
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