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  • jricci's Avatar
    09-22-2019, 10:48 PM
    I just sent the webinar link to your Private Messages. Let me know if you didn't receive it. I frequently have problems with private messages not...
    2 replies | 1258 view(s)
  • jricci's Avatar
    09-22-2019, 10:37 PM
    The Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC) hosted a webinar by Dr. Jennifer Taylor-Cousar on CFTR modulators and your...
    2 replies | 1258 view(s)
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2 Visitor Messages

  1. Oh this sounds great!
    I have never had a Facebook account but maybe I will use my husband's or just create one for CF research. Ill let you know, and THANK YOU
  2. I run a secret group on Facebook for people with CF and NTM, mainly abscessus. If you want to join let me know. You will have to be friends with me or someone else in the group for us to add you, but you can unfriend once in. It is a super supportive, knowledgeable group. Mainly mom's.
    Lori Devoti
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