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    02-13-2018, 09:16 AM
    ToriMom started a thread Guardedly EXCITED??! in Adults Does this mean what I think it means? ...
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    01-31-2018, 01:32 PM
    ToriMom replied to a thread Tezacaftor/Ivacaftor in Adults
    Billy, Thank you so much for your encouraging reply. It feels like every day since her diagnosis I've lived in fear of losing her, and...
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2 Visitor Messages

  1. Oh this sounds great!
    I have never had a Facebook account but maybe I will use my husband's or just create one for CF research. Ill let you know, and THANK YOU
  2. I run a secret group on Facebook for people with CF and NTM, mainly abscessus. If you want to join let me know. You will have to be friends with me or someone else in the group for us to add you, but you can unfriend once in. It is a super supportive, knowledgeable group. Mainly mom's.
    Lori Devoti
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