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  • kenna2's Avatar
    Yesterday, 12:38 PM
    kenna2 replied to a thread symdeco in Adults
    I started out on Orkambi first then switched to Symdeko. If you're just started your first CF corrector med, you're going to go through a purging...
    3 replies | 145 view(s)
  • kenna2's Avatar
    12-05-2018, 04:25 PM
    kenna2 replied to a thread CRMS & Mucus in Families
    Not sure if you are doing this or know about this, but my ENT who sees a lot of CF patients, has us adding a drop of baby shampoo to our sinus...
    1 replies | 180 view(s)
  • kenna2's Avatar
    12-03-2018, 04:55 PM
    I know a lot of CFers have jobs where they can work from home or remotely. I don't know specifics, but I'm just sharing the knowledge I have.
    3 replies | 3828 view(s)
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