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  • kenna2's Avatar
    02-14-2018, 02:31 PM
    kenna2 replied to a thread Guardedly EXCITED??! in Adults
    I know I saw in an article two days ago that Symdeko would be shipped and in pharmacies as of yesterday. However, since this is a specialty drug,...
    6 replies | 987 view(s)
  • kenna2's Avatar
    02-01-2018, 09:31 PM
    I culture pseudomonas mainly. I am anxiously awaiting for all the new drugs and i'm trying my best to keep myself healthy enough so I can be around...
    2 replies | 1037 view(s)
  • kenna2's Avatar
    01-31-2018, 10:36 PM
    So after talking with my doctor today, it seems like my arsenal of IV meds is pretty much gone. So I was curious as to what happens when your sputum...
    2 replies | 1037 view(s)
  • kenna2's Avatar
    01-30-2018, 11:15 AM
    Yeah I agree with your friends...not good. With CF you also have liver disease, which drinking will make worse, and is something that could kill you...
    5 replies | 751 view(s)
  • kenna2's Avatar
    01-21-2018, 05:01 PM
    You need to bring this up to your doctor. Also maybe consider sleeping propped up to help reduce the intensity of your coughing fits when they start...
    4 replies | 1309 view(s)
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