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  • Jeannie85's Avatar
    08-15-2017, 07:36 AM
    I don't have info on your mutations regarding Kalydeco but we just go ours in the mail yesterday for my 4 year old daughter. She took the first dose...
    2 replies | 147 view(s)
  • Jeannie85's Avatar
    08-07-2017, 04:12 PM
    Jeannie85 replied to a thread taking Ivacaftor? in Adults
    Hi, thanks for your response Jricci! We are still waiting for the pre authorization and insurance "stuff" It is frustrating and I am patiently and...
    22 replies | 4115 view(s)
  • Jeannie85's Avatar
    08-01-2017, 07:04 PM
    Jeannie85 replied to a thread taking Ivacaftor? in Adults
    My daughter just had her eye exam today and it went well! Now we just wait for the rest to process. I'm getting nervous about her starting Kalydeco....
    22 replies | 4115 view(s)
  • Jeannie85's Avatar
    07-20-2017, 06:34 PM
    Jeannie85 replied to a thread taking Ivacaftor? in Adults
    Thanks for all the responses! I was informed about the liver levels needing to be checked q3months. Also have an eye exam scheduled to check for...
    22 replies | 4115 view(s)
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About Jeannie85

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