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  • missme's Avatar
    08-08-2017, 04:38 AM
    missme replied to a thread taking Ivacaftor? in Adults
    Hi! I just wanted to add an interesting detail that Vertex presented during the European Cystic Fibrosis Conference this year: Results presented...
    22 replies | 4106 view(s)
  • missme's Avatar
    08-01-2017, 07:40 AM
    WOW! That's great news! They said previously that they only considered one of those 5 (which would have been strange) but now all 5 are approved. I...
    2 replies | 839 view(s)
  • missme's Avatar
    07-28-2017, 09:41 AM
    missme posted a visitor message on missme's profile
    4005+2T->c splice mutation with residual function, PS and the second is an X-mutation. Wanting to try Kalydeco for my rarest mutation.
  • missme's Avatar
    07-28-2017, 08:36 AM
    missme replied to a thread taking Ivacaftor? in Adults
    Thanks Jeannine for your efforts to inform about the EAP! I don’t know if the Vertex’ EAP’s are valid in Europe but knowledge about these modulator...
    22 replies | 4106 view(s)
  • missme's Avatar
    07-25-2017, 04:45 AM
    missme replied to a thread taking Ivacaftor? in Adults
    Hi! I just saw in another post here that you have one of the splice mutations that Vertex want to discuss label expansion for, the 2789+5G->A ? Do...
    22 replies | 4106 view(s)
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  1. 4005+2T->c splice mutation with residual function, PS and the second is an X-mutation. Wanting to try Kalydeco for my rarest mutation.
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