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  • jaimers's Avatar
    04-26-2017, 08:02 PM
    jaimers replied to a thread IV protocol in Adults
    I've never heard that protocol before and neither center I've been to (UNC and now Mass General hospital) follows that protocol. It's always been 14...
    8 replies | 424 view(s)
  • jaimers's Avatar
    04-19-2017, 08:17 PM
    Hopefully you'll be able to get some solid answers soon! Hsve the docs mentioned anything about CFTR related metabolic syndrome (Not full blown cf,...
    9 replies | 1362 view(s)
  • jaimers's Avatar
    04-19-2017, 03:44 PM
    jaimers replied to a thread PICC Line/Home IV Pointers? in Adults
    Yeah I was getting up like, 3 or 4 times per dose to go get something I forgot :rolleyes: so these really helped me!
    6 replies | 669 view(s)
  • jaimers's Avatar
    04-19-2017, 11:36 AM
    jaimers replied to a thread PICC Line/Home IV Pointers? in Adults
    The last time I did home IVs I made up several days worth of dosing kits--a ziplock with gloves, saline and heparin flushes, cap, alcohol swabs, etc....
    6 replies | 669 view(s)
  • jaimers's Avatar
    04-19-2017, 11:30 AM
    I'd recommend finding a running store in your area and get fitted properly as Ratatosk said. They can look at how you walk and run and give you and...
    7 replies | 499 view(s)
  • jaimers's Avatar
    04-19-2017, 11:26 AM
    jaimers started a thread For the moms and dads in Adults
    I saw this ad and wanted to share it and say to the CF moms and dads that you're doing a great job! CF is hard and I can't imagine the difficulty of...
    2 replies | 474 view(s)
  • jaimers's Avatar
    04-19-2017, 11:12 AM
    jaimers replied to a thread Peeling fingernail tips in Nutrition
    My nails peel too! Not sure if I've ever mentioned it to the cf doc as I just assumed it was normal? Apparently not ha! I have been low on iron a...
    5 replies | 751 view(s)
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