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  • Ratatosk's Avatar
    09-06-2019, 09:28 AM
    Ratatosk replied to a thread Relationship issues in Families
    I know this is spendy.... $200+ but Bose makes sleep buds for people who live with loud snorers. Not sure if they would do the trick, if it's the...
    3 replies | 1381 view(s)
  • Ratatosk's Avatar
    09-05-2019, 09:12 AM
    Got the replacement vest just in time. Vest was stopping several times during treatment and I'd have to unplug it. Must've been having issues for a...
    1 replies | 1357 view(s)
  • Ratatosk's Avatar
    09-03-2019, 02:23 PM
    This past weekend, DS' vest has once again started sounding different and been throwing error codes about 5 minutes before treatment time should...
    1 replies | 1357 view(s)
  • Ratatosk's Avatar
    08-29-2019, 01:32 PM
    Ratatosk replied to a thread Update - ALT Results in Adults
    Interesting... They indicated they (vertex) didn't consider the elevated liver enzymes (ALT) a concern or reportable until they reached 3 times the...
    2 replies | 300 view(s)
  • Ratatosk's Avatar
    08-29-2019, 09:19 AM
    Ratatosk started a thread Update - ALT Results in Adults
    DS has been on Symdeko for about a year and last winter his ALT was elevated. While he was on Orkambi, he had liver function tests every few months...
    2 replies | 300 view(s)
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About Ratatosk

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Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018


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