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  • Ratatosk's Avatar
    11-10-2019, 11:47 PM
    Ds had a normal sweat test at 3 weeks, but was born with a bowel obstruction and genetic tests indicated cf. his symptoms were mainly digestive and...
    2 replies | 219 view(s)
  • Ratatosk's Avatar
    11-04-2019, 11:13 PM
    My teen has had the vest since he was three years old. Prior to that we did manual cpt. He does his vest 3 times a day, more if he's sick. He plays...
    6 replies | 924 view(s)
  • Ratatosk's Avatar
    10-21-2019, 02:48 PM
    https://www.fda.gov/news-events/press-announcements/fda-approves-new-breakthrough-therapy-cystic-fibrosis
    9 replies | 3418 view(s)
  • Ratatosk's Avatar
    10-14-2019, 10:35 PM
    Ratatosk replied to a thread Constipation in Adults
    Thanks for your response. Something to keep in mind. He tends to take awhile to recover from stomach bugs. I've heard norovirus is going around. ...
    5 replies | 2965 view(s)
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About Ratatosk

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Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018

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