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  • Ratatosk's Avatar
    05-16-2019, 10:44 AM
    I think I'll just go back to paying out of pocket. It's what I do with the disposable ones when we travel. Last year, since we'd met our out of...
    2 replies | 145 view(s)
  • Ratatosk's Avatar
    05-15-2019, 03:56 PM
    I'm thinking this has to be an error or a glitch because this is so ridiculous... I figured when I got a bill, it was because our insurance gave us...
    2 replies | 145 view(s)
  • Ratatosk's Avatar
    05-02-2019, 09:19 AM
    Ratatosk started a thread Symdeko Update in Adults
    Our teen has been on Symdeko since last August. He'd done well on Orkambi for two years, but wanted to try Symdeko. He's continued growing -- prior...
    0 replies | 538 view(s)
  • Ratatosk's Avatar
    04-29-2019, 10:50 AM
    Yes, he does hypersal three times a day. Once we hit our $2700 out of pocket max for medical care, we don't have to pay copays UNLESS, which is the...
    3 replies | 569 view(s)
  • Ratatosk's Avatar
    04-29-2019, 10:46 AM
    Only issue with a baby bottle sterilizer would be to make sure they reach optimum temperture for sterilization. I know years ago someone posted...
    4 replies | 413 view(s)
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About Ratatosk

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Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018


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