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  • Ratatosk's Avatar
    04-21-2017, 06:29 AM
    Ratatosk replied to a thread Is no cough good or bad? in Adults
    Could be too that in addition to the inflammation being reduced that stuff was coming from his sinuses making him cough and that he doesn't have...
    4 replies | 223 view(s)
  • Ratatosk's Avatar
    04-20-2017, 03:00 PM
    Am I correct in reading under #1 that the test was to detect the 32 most common mutations? Or did they test for more?
    5 replies | 540 view(s)
  • Ratatosk's Avatar
    04-20-2017, 11:37 AM
    This announcement makes me a little wary. We've had issues with our BCBS Pharmacy (Prime) in the past -- issues with prescriptions we've never...
    0 replies | 63 view(s)
  • Ratatosk's Avatar
    04-20-2017, 11:30 AM
    Ratatosk replied to a thread Primary Care Dr in Adults
    DS' is still a teen, but we've always had an infection disease specialist as his primary CF physician then we have a local pediatrician who handles...
    5 replies | 327 view(s)
  • Ratatosk's Avatar
    04-19-2017, 11:54 AM
    Ratatosk replied to a thread For the moms and dads in Adults
    I saw it on facebook and it brought back a lot of memories of DS' NICU stay --- crying/praying in the shower, anger/screaming fits in the car when...
    2 replies | 432 view(s)
  • Ratatosk's Avatar
    04-19-2017, 09:21 AM
    Depending upon how much I walk -- tend to put on more miles in the summer, I replace my shoes every 6-12 months. I wear ascics. Currently I'm...
    7 replies | 372 view(s)
  • Ratatosk's Avatar
    04-17-2017, 09:07 PM
    Ratatosk replied to a thread Increased cough in Adults
    I imagine he wouldn't be too thrilled about adding a sinus rinse into the mix. Ds likes to do it cuz it grosses me out and I dry heave.
    31 replies | 1932 view(s)
  • Ratatosk's Avatar
    04-17-2017, 03:25 PM
    Ratatosk replied to a thread Increased cough in Adults
    Have you increased the number of vest or CPT treatments you do a day? When ds develops a cough we increase vest treatments from 3 a day to 4 and...
    31 replies | 1932 view(s)
  • Ratatosk's Avatar
    04-13-2017, 11:43 AM
    Ratatosk replied to a thread How long to baseline? in Adults
    Ugh, I thought after they got older, one didn't have to worry so much about RSV! I was so terrified of it when DS was an infant and in daycare...
    19 replies | 1052 view(s)
  • Ratatosk's Avatar
    04-05-2017, 10:21 AM
    DS has had both a Wii and Xbox systems. Xbox is handsfree -- originally had an xbox 360 with a Kinect, now has an xbox one. Wii had more options...
    7 replies | 627 view(s)
  • Ratatosk's Avatar
    04-03-2017, 10:03 AM
    It is scary! Especially when you hear stories of people who do everything they're supposed to do and still come down with a CF bug, get knocked for...
    55 replies | 5989 view(s)
  • Ratatosk's Avatar
    04-03-2017, 09:49 AM
    Ratatosk replied to a thread CF/not CF in Adults
    I always understood higher number = cf. Guess a lot depends though on the age of the child. Teeny tiny infants it's more difficult to get enough of...
    6 replies | 557 view(s)
  • Ratatosk's Avatar
    03-27-2017, 10:04 AM
    Ratatosk replied to a thread Tobi in Adults
    DS has been on Tobi off and on since he was 2 or 3 months old and cultured pseudo. Cultured if off and on over the years, usually no symptoms. The...
    10 replies | 892 view(s)
  • Ratatosk's Avatar
    03-27-2017, 08:45 AM
    I know a number of people, who have dd F508, including my child with varying diagnoses and progression. My son was diagnosed at birth due to...
    55 replies | 5989 view(s)
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Parent to a child wcf double delta f508

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