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  • Ratatosk's Avatar
    07-14-2017, 09:52 AM
    Ratatosk replied to a thread Funny anecdote in Adults
    Soooo you have hamster-like veins....? :)
    1 replies | 253 view(s)
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    07-14-2017, 09:51 AM
    Ratatosk replied to a thread Newborn in Newly Diagnosed
    It means that certain genetic markers showed up with either being a carrier of cf or having cf. If sweat test numbers come back as high or...
    3 replies | 378 view(s)
  • Ratatosk's Avatar
    07-13-2017, 08:29 AM
    Ratatosk replied to a thread dry cough, tightness? in Adults
    Have you had cultures done recently? When ds was younger he developed a dry throat clearing cough, which we thought was just a habit, possibly post...
    6 replies | 798 view(s)
  • Ratatosk's Avatar
    07-12-2017, 08:15 AM
    With DS we always felt it was important for him to learn how to swim; however, we avoid hot tubs --- higher temps equals more bacteria. That said,...
    4 replies | 778 view(s)
  • Ratatosk's Avatar
    07-10-2017, 10:36 AM
    I would doublecheck with your CF doctor to see if you're on the correct meds for whatever infection you have, as well as to make sure it's not...
    3 replies | 887 view(s)
  • Ratatosk's Avatar
    07-03-2017, 08:39 AM
    Great advice both the physical exercises and mental/attitude outlook. My suggestion would be hydrate, hydrate, hydrate. We also do not use the word...
    5 replies | 1218 view(s)
  • Ratatosk's Avatar
    07-03-2017, 08:33 AM
    Could be sinus issues, could be caused by allergies. DS' nose never runs because his nasal mucus is extra thick. He does the same thing. Can you...
    3 replies | 479 view(s)
  • Ratatosk's Avatar
    07-03-2017, 08:28 AM
    Our vest is a Hill Rom 105. First Vest he got at age 3 was a Hill Rom 104. This last one lasted 3 1/2 years. I have an online friend whose...
    6 replies | 1010 view(s)
  • Ratatosk's Avatar
    06-30-2017, 03:03 PM
    Ratatosk replied to a thread American Healthcare Act in Adults
    Got a letter from our CFF rep suggesting trying to meet up with our senators during the 4th of July break.... Here's a portion of it: Advocacy...
    34 replies | 4180 view(s)
  • Ratatosk's Avatar
    06-30-2017, 01:41 PM
    Finally arrived this morning. Usually we have a little bit of a warning -- starts growling, throws an error code and then works fine after...
    6 replies | 1010 view(s)
  • Ratatosk's Avatar
    06-29-2017, 04:41 PM
    Out of the blue at 11:30 pm last night, DS's vest was no more. Came downstairs to see a call for service message with an error code. Tried plugging...
    6 replies | 1010 view(s)
  • Ratatosk's Avatar
    06-28-2017, 11:03 AM
    Ratatosk replied to a thread questions on travelling in Adults
    Medical equipment doesn't count toward your carry on allotment. I've rarely had issues with the vest fitting in the overhead compartment. I once...
    4 replies | 686 view(s)
  • Ratatosk's Avatar
    06-27-2017, 11:52 AM
    Ratatosk replied to a thread Which pump ? in Adults
    We're in the states and we use a Pari Vios for travel. We used to have a Devilbiss Pulmoaid as well for home use, but it's a bit bulkier. Both...
    1 replies | 234 view(s)
  • Ratatosk's Avatar
    06-26-2017, 04:55 PM
    Ratatosk replied to a thread Now that summer is here in Adults
    A friend of mine's daughter had issues with overheating even in the winter time -- she couldn't wait inside in her winter coat waiting for her mom or...
    11 replies | 1017 view(s)
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Parent to a child wcf double delta f508

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