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  • Ratatosk's Avatar
    11-24-2019, 11:28 PM
    Ratatosk replied to a thread Trikafta with no purge??? in Adults
    When ds started orkambi he had a stuffy nose, cold like symptoms and digestive issues. Very loose stools, liquid for several days. Being his main cf...
    2 replies | 265 view(s)
  • Ratatosk's Avatar
    11-10-2019, 11:47 PM
    Ds had a normal sweat test at 3 weeks, but was born with a bowel obstruction and genetic tests indicated cf. his symptoms were mainly digestive and...
    2 replies | 1661 view(s)
  • Ratatosk's Avatar
    11-04-2019, 11:13 PM
    My teen has had the vest since he was three years old. Prior to that we did manual cpt. He does his vest 3 times a day, more if he's sick. He plays...
    6 replies | 1933 view(s)
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About Ratatosk

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Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018


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