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  • Ratatosk's Avatar
    02-14-2018, 03:02 PM
    Ratatosk replied to a thread Guardedly EXCITED??! in Adults
    I seem to recall with Orkambi, it was approved the beginning of July. I'd assumed we could just have our doctor send in a prescription and we'd be...
    6 replies | 1056 view(s)
  • Ratatosk's Avatar
    02-13-2018, 11:22 AM
    Ratatosk replied to a thread Guardedly EXCITED??! in Adults
    I was excited too thinking it was the triple combo; however, it's still another tool in the toolbox, helps some other mutations who are heterozygous...
    6 replies | 1056 view(s)
  • Ratatosk's Avatar
    02-13-2018, 11:20 AM
    DS had been on Orkambi for a little over a year, was a breeze signing up for it with Vertex GPS assistance, we were even thrilled to find that we...
    7 replies | 1057 view(s)
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Parent to a child wcf double delta f508

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