Tab Content
  • Ratatosk's Avatar
    10-16-2018, 08:10 AM
    Ratatosk replied to a thread Class trip in Families
    I don't have CF, but I've been to a couple different caves before DS wcf was born --- Colossal Cave in Arizona was a dry cave. I remember thinking...
    3 replies | 403 view(s)
  • Ratatosk's Avatar
    10-15-2018, 08:07 AM
    I think, too that certain paints -- oils and oils used to clean brushes would be more of an irritant. Acrylics usually don't have much of an odor. ...
    5 replies | 761 view(s)
  • Ratatosk's Avatar
    10-11-2018, 09:03 AM
    Ratatosk replied to a thread Dry Cough/Symdeko in Adults
    Whoops, yes, sorry about that. Generic 7% hypertonic saline. :)
    6 replies | 1753 view(s)
  • Ratatosk's Avatar
    10-10-2018, 02:15 PM
    Ratatosk replied to a thread Dry Cough/Symdeko in Adults
    He had a clinic appointment last week and his pfts were fine and he isn't culturing anything other than normal flora. I did mention the cough, they...
    6 replies | 1753 view(s)
  • Ratatosk's Avatar
    10-04-2018, 02:31 PM
    I seem to recall Hill Rom and probably the other company as well, have different financing options for whatever wasn't covered by insurance. Sort of...
    3 replies | 157 view(s)
  • Ratatosk's Avatar
    10-03-2018, 01:24 PM
    He's on both. I kinda hoped they'd do away with the tobi, since he hasn't cultured pseudo for awhile, but in June he cultured a different but that...
    6 replies | 782 view(s)
  • Ratatosk's Avatar
    10-03-2018, 01:22 PM
    I figured for the price, it'd be a good travel nebulizer and when the 50 psi gives up, we'll probably get the similar one listed above. We got...
    7 replies | 1602 view(s)
  • Ratatosk's Avatar
    10-03-2018, 01:20 PM
    Ratatosk replied to a thread opening up in Families
    Our child is 15 and for him, CF is just a fact of life. He has a routine --- vest, nebs, enzymes but it doesn't really affect his everyday life. He...
    3 replies | 691 view(s)
  • Ratatosk's Avatar
    10-03-2018, 01:09 PM
    Possibly... Methinks insurance is using the fact that we recently got a "new" refurbished replacement vest as an excuse not to cover new technology....
    10 replies | 1207 view(s)
  • Ratatosk's Avatar
    10-02-2018, 01:26 PM
    My husband and I were discussing this on our drive back from the City after the appointment yesterday and he was going to ask. He's got all the...
    10 replies | 1207 view(s)
  • Ratatosk's Avatar
    10-02-2018, 01:13 PM
    We have BCBS and at the time had a select choice policy in which anything other than our two local clinic/hospital providers were considered out of...
    3 replies | 157 view(s)
  • Ratatosk's Avatar
    10-02-2018, 10:32 AM
    Our clinic mentioned that they did have another request, which was appealed and denied. They will write a letter for us. They (insurance & clinic)...
    10 replies | 1207 view(s)
  • Ratatosk's Avatar
    10-02-2018, 10:26 AM
    Actually we have reduced some medications. DS' doctor retired about a year ago and we are now with a new CF clinic. DS was probably on more...
    6 replies | 782 view(s)
  • Ratatosk's Avatar
    09-28-2018, 01:52 PM
    Both my FIL and BIL have severe sinus disease -- multiple surgeries, chronic infections, so I assumed they were probably both carriers; however, my...
    3 replies | 856 view(s)
  • Ratatosk's Avatar
    09-26-2018, 09:19 AM
    We have a clinic appointment next month, so we'll see what RT says. I have heard people say they seem to get a better workout, that it squeezes them...
    10 replies | 1207 view(s)
  • Ratatosk's Avatar
    09-26-2018, 09:17 AM
    I've ordered from Vitality and from the one I listed above --- https://www.shopnebulizer.com/p-precision-medical-easycomp-air-compressor.html In fact...
    7 replies | 418 view(s)
  • Ratatosk's Avatar
    09-25-2018, 09:00 AM
    Anxious to hear as well. I actually dropped DS' a couple years ago and was able to find a replacement pressure gauge online for $50. There are...
    7 replies | 418 view(s)
  • Ratatosk's Avatar
    09-25-2018, 08:48 AM
    Thanks. I'd forgotten that the first time we'd filed for the Hill Rom 104, we'd been told we'd get denied the first go around. I did get a packet...
    10 replies | 1207 view(s)
  • Ratatosk's Avatar
    09-24-2018, 11:08 AM
    DS was denied coverage for the new Monarch vest because he has an existing vest, is doing well and because they won't cover a new vest based on...
    10 replies | 1207 view(s)
No More Results
About Ratatosk

Basic Information

Signature


Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018

Statistics


Total Posts
Total Posts
20,898
Posts Per Day
4.56
General Information
Last Activity
Today 01:30 PM
Join Date
04-05-2006
Referrals
0

Friends

Ratatosk has not made any friends yet